Diagnosed 3 years ago on my 51 birthday ,what a great gift lol 😂

[Niso]

Hi guys it's great idea to open this group for us the teen-agers of pca.

I am 54 yo, married with two kids, 18,16 and live in israel.

I was diagnosed 3 years ago with oligometastatic pca, gleason score 7,psa 25.

After consulting with few top medical experts, 2 surgeons, 2 pca oncologists and 3 radiation oncologists and reading tons of information,doing pet psma and pelvic mri, I decided considering my young age, passion for life and good physical condition, to go for the all-inclusive treatment package hhhhh and try to win the Jackpot of cure. even though I knew what will be the costs because the cancer was widely spread to seminal vesicles and nerves and I had bone met on my iliac bone.

So I started with some life style changes, switched my diet to vegetable based one, took various supplements and rso cannabis oil, did yoga and Qi gong, long walks and bike riding every day, than started with robotic prostatectomy following with adt+abiraterone for two years and radiation to my pelvis and sbrt radiation to the bone met.

During those years I wrote my bucket list and started traveling the world, sold my part In the buisness to my colleagues ,went back to the college studying some therapy methods, started playing guitar that was my dream and never had time for it, did a lot of meditation and breathing exercises.

I was un detectable for 2.5 years and all scans were clear, now at the last 6 months since I stopped adt and abirateron there was a slow increase in my psa started on 0.01 and now it's 0.31 basically it's biochemical recurrence despite the fact that the pet psma scan that I did few weeks ago is still clear.

my options for the moment are those :

1.active surveillance monitoring my psa and doubling time, doing another pet psma scan in 2-3 months.

2. To go back on adt+ abirateron or xtandi or apalutamide.

3. To do lumbar and pelvis mri to try and find the lesion and treat it with sbrt or hifu or cryotherapy.

Thank you for the patience and Sorry for the long story, if you have some good advice I will more than happy to hear it.

Keep on fighting brows

[Hidden]

Hi, I’m 56 and was diagnosed when I was 53. I did the radical prostatectomy, radiation, ADT, Erleada (apalutimide) for approximately 18 months. I was taken off the Erleada because the side affects were progressively getting worse....but I was undetectable at the time. It was then decided to do Taxotere because a study indicated that early use of Taxotere increased overall survival. Anyway, I started 6 rounds of Taxotere January 2020, and finished my last dose at the end of April....still undetectable. Continuing on with the ADT only, by July last year, my PSA began to rise slowly, my oncologist prescribed Provenge...and I completed that in October then immediately started on Xtandi. Well, the PSA continued to rise and by early January it was 13.6. So I stopped Xtandi and started Jevtana. I just took my second dose last Friday, but my PSA did lower to 13.0 after the first dose.We’re all different, and none of us can predict the future, but if I had it all to do over again, I would’ve stuck it out with the Erleada...even though the side effects were horrible, the beast was under control...now that it’s out of the box, I need another silver bullet to get it back into a durable remission.

[Hardhead003 in reply to Hidden]

contact me back if you want help!!

[Chugach]

Shit - the same damn thing happened to me but on my 46th birthday!! Shitty club to be in

[Danish-patient Moderator]

I would start with 2) arbirateron right away to put pressure on the cancer. Then I would go with 1) PSMA PET scan. And if that scan is positive - which probably requires a PSA of more than 0.5 - I would consider PSMA Lutetium treatment. The combination of Abirateron and lutetium can be very effective as one seems to amplify the other. That’s a combination that has kept me alive for many years.