I saw my oncologist yesterday and he mentioned regulix as a possibly better alternative to lupron or other ADT treatments. However it is not yet approved for use even though the clinical trial suggests it is a much better alternative.
I would very much like to try it because it would be a good way to test the theory that the theory that the lymph nodes that are showing as either PC metastasis or lymphoma (radiologist suggested that this is an atypical pattern for PC metastasis) in a recent axumin PET scan are in fact PC. I prefer to not get a 3 or 6 month Lupron shot if I can get the regulix instead. If my PSA does drop precipitously it would indicate that the lymph node enlargements and tracer uptake are due to PC not lymphoma. The only other way to determine which it is is by biopsy which for the particular lymph nodes is either very invasive or to be done by fine needle biopsy which may be inconclusive.
So I am really anxious to try relugolix but have no idea when or if it might be approved.
Anyone know anything about this and or interested in working to get it approved before we all are dead? I wrote to my congressperson and senators.