Prostate Cancer And Gay Men
436 members297 posts

I had HIFU 7 years ago

Remain cancer free and have never had any side effects. HIFU will be covered by Medicare effective July 1.

If you are a Gleason 6 or 7 my opinion is HIFU is the only option. No or minimal side effects.

Best 25 K I ever spent.

Glenn Seymour

North Carolina

9196247022

7 Replies
oldestnewest

What is HIFU?

Reply

I googled the definition. It leads me to believe it's Proton therapy... however not sure.

Reply

I'm glad it worked for you, but many guys don't have the same experience. 15-30% of men who had HIFU have a recurrence in the treated area. Even more have a recurrence in the untreated area. In the largest study so far, 5-year recurrence-free survival was only 72%. And its side effect profile is no better than SBRT or HDR brachytherapy.

Anyone considering it should read this before deciding:

pcnrv.blogspot.com/2016/12/...

Reply

Hi

Once onc recommended HIFU but Medicaid doesn't cover.

You think they will as of July 1?

Thanks

John

Reply

The FDA rejected coverage several times, and with good reason - no long term data. The HIFU manufacturers got around the FDA by getting approval of it for ablation of prostate tissue (like a TURP) although no one uses it for that. It's possible that they might approve it based on the Ahmed/Emberton study in the UK.

Reply

Can't agree more with Glenn. One year out, so far so good.

Reply

Hi Glenn

Can I call you during the weekend ?

Thanks

Just diagnosed and confused re HIFU

I have medicaid

Reply

You may also like...