Just had my scan results: I wrote my... - Prostate Cancer N...

Prostate Cancer Network

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Just had my scan results

Stephen399b profile image
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I wrote my first question about 6 weeks ago when had first diagnosis of PC with Gleeson of 4:3. Had a lot of interesting and (have to say) quite confusing information as a newbie!

Now just had PSMA scan and it has metasticised with hot spots in ribs.

Going to start on ADT as soon as possible. Oncologists also discussing need for some chemo. I would welcome any thoughts and experiences. I have read all the sites and guidance documents, so know what could happen, but what is it like in the real world?

Also just getting over covid so not a great time (although much better than so many others)

I am 70, generally fit and working (not for last few weks) and live in UK.

Many thanks

Stephen

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Tall_Allen profile image
Tall_Allen

Be sure to ask for Neulasta with your chemo, as your immune system is probably depleted from the Covid-19.

Stephen399b profile image
Stephen399b in reply toTall_Allen

Thank you Tall Allen.

My immune is already compromised because I have a bone marrow cancer, Essential Thrombocythemia for which I take Hydroxycarbamide - chemo in a capsule, so my haematologist is also involved. We will have to be careful

Kind regards

Stephen

Tall_Allen profile image
Tall_Allen in reply toStephen399b

You don't sound like a great candidate for chemo. Where in the UK are you? I read that Zytiga has been approved for the NHS in Scotland, but not yet in England. You may also benefit from debulking the prostate with SBRT.

Stephen399b profile image
Stephen399b in reply toTall_Allen

We are in England. You are correct and my haemo, urologist and the oncology team will work very closely. They all know each other! have to be careful.

Thanks for your thoughts, I will ask the questions on my next appointment.

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