I am 73 y.o. with G(4+3=7) Grade 3 on 6 cores out off 12 but on a special Scan pre-RT they found multiple tumors on both side., Unfavourable Intermediate Risk. March 2020.
I was treated with VMAT-RT Hypofracionnated 3 Gy X 20 Fx for a total of 60 Gy on the whole pelvic area (139.57cc but prostate = 45.83 cc only). June 2020.
I also had ADT Lupron Depot 22.5 mg/12 weeks X 2. May 2020 to Nov 2020.
I had strong Secondary Effects from the ADT.
But I have started to have burning sensations each time that I urinate.
I saw my urologist this morning and he did a cystoscopy. And another one in March 3rd 2021. He found multiple Uretral strictures.
Anybody had that experience?
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doc1947g
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No, do NOT under any circumstances have a cystoscopy now. The burning is just urethral inflammation - take some naproxen and pyridium (over the counter) and it will diminish over time. A cysto puts pressure on very sensitive, friable tissues that can easily tear. It will cause problems.
I just talked with my Urologist and he told me that pyridium could be dangerous for me because I have a Chronic Renal Insufficency and the pyridium will make it worse.
You see, Allen, I have a few other health problems which made all my treatments harder on me.
This morning, I almost choke because I have to wear a PM2.5 filtering mask because my imunitary system is DOWN but it is very hard to breath trough it with my Emphysema Gold 3. I had to use my Ventolin Inhaler.
So Lymphoma, Renal Insuffisancy, Emphysema and more...
There is only one thing that causes burning while peeing after radiation, and that is inflammation of the urethra. You don't need a dangerous cystoscopy to tell you that. The question is - what to do about it? I suggest you call/email your RO. I don't know if you can take an NSAID with your renal insufficiency. He may have a suggestion.
Clearly, you are sensitive to the inflammatory effects of the radiation. I cannot say how long it will last. For me, it lasted only 2 weeks. Maybe there is a topical anti-inflammatory that can be injected into the urethra? I really don't know.
The Gleason score doesn't change the side effects. It's true that your whole pelvic radiation increases the risk of bowel side effects. I think you are just more sensitive to the urinary effects.
The biologically equivalent dose I had was actually more than yours. If your prostate received 60 Gy in 20 fractions, my biologically equivalent dose was 40% higher than yours.
No. What I had Stereotactic Body Radiation Therapy (SBRT) - it is ultrahypofractionated. While you probably had cone-beam CT tracking at the beginning of each session, I had it continually throughout each session. That kind of precision is necessary when you are delivering 8 Gy per session instead of just 3 Gy. The heightened degree of image guidance is necessary because even a small "miss" could be quite toxic and underdeliver the curative dose to the prostate.
LOL. I wear all my jewelry on the inside. My brain wiring and implants are platinum/iridium and my crowns are gold. I'm worth a fortune if I were cremated.
And you are very lucky. My brother in law got an RP in 2009 than a Salvage RT in 2016 and another rescidive in 2019, More RT and ADT for the next 24-36 months.
Absolutely keeps those endorphins going and it keeps my mind focus and sharp...My humor tends to be on dry side not for everyone...Fight on...Doc Holliday ...My Darling Clementine....1947!!!!
I am 73 y.o. and really learned to properly speak in English in my early 20s then I worked 40 years in an English hospital as an anaesthesia assistant so now I consider myself as a full bilingual.
BTW books are so much cheaper in English and I am an avid reader. A book every 2-3 days.
I am confined to my bed following a work accident followed by a discoidectomy that was NOT succesfull since 1994. So I spend my time reading on my Kindle and go out for a 5 minutes walk that exhaust me due to my Pulmonary Emphesyma Stage 3, Chronic Renal Insufficancy Grade 3 and now a PCa G(4+3=7) Grade 3.
I am really unlucky with tha number but it could have been 4 so I keep quiet.
Well I admire your strength thru this battle coupled with your other issues....My father was an avid reader...learned so much and he learned English by reading comic books as a kid.
Me too and watching Walt Disney on Sunday on the B&W TV and a lot of Sci-Fiction show which is what I read too. I actually in the middle of a 171 books serie of Science-Fiction story.
My email address is the name of a German Sci-Fictions series that they publish every weeks that started in 1961 and it is still published. There are 3089 books of about 60 pages each as of today. They come out every Friday.
It is Perry Rhodan. On one of their sites you can read a resume of each books by using Google Translator which is what I do weekly.
I know you are American and I figured that either you are very rich or you have good insurrances.
Her in Quebec we have a medicare system that cover almost everything except for medication where you have to pay up to a limit depending of your earning. Like me I have to pay up to $96.00 every month so anything that alltogether cost more, I have over 12 different medications that would cost me over $2,000.00 per month but I spend just $96.00. When I was on ADT, then it was another $3,000.00 3times since April 2020.
Diagnosed January 2019...PSA 340 down to 13 now on lupron and zytiga...scans good so far..work full time...Insurance I hate with a passion...pay 2100 month for my wife and i... and just started medicare...keep both for now as Zytiga is 10Gs a month plus other cost for treatment...it is a complex issue here...when government runs things there is the good and the very bad...but it is what it is.
I have a Lymphoma of the Marginal Zone in the bone marrow since July 2019.
Until 2017 I never really had any health problems. In 2017 I had a pleuresy (water in the lung envelope. I had a chest tube on the left side for 16 days. Then every thing went dow. Lymphoma July 2019. PCa in March 2020 and Emphysema in October 2020. My Renal Insufficency is from 2000 but I learned to live with it and treated it by drinking about 6 liters of water and ONE Cores Light per day.
For my prostate, I never had any symptoms. In January 2020 when my PSA went from 6 to 13 in a month and a half, I was send directly to an urologist and he took 12 biopsies. 6 of them, all in the right lobe, were positive G(4+3-7) Grade 3 Unfavourable Intermediate Risk and when they did the special planning Scan they discovered many tumours on both sides and very close to the capsule and IntraNeural Invasion.
ADT screw-up on April 4th then redo on May 31st with VMAT-RT from June 8th to July 7th (20 Rx). ADT will finish on Nov. 16th 2020 and Secondary Effects for 6 to 12 months.
Do you know your Gleason Score from your biopsies and did you had MRI or CT-Scan?
Me the big problem is that I am VERY limited to move my body.
I am 6 feet 1 inch and weigh about 160 pounds, so I do not have obesity problem but with my back problem and now with emphysema, I am stock to my bed. Walk with a walker for 5 minutes and use Ventolin to get my breath back. Then I go out only for my doctors R/V and for blood tests/
Remember the world is ruled by the enemy...we all have a free will that God gave us...God will hold our hand and guide us thru this battle of life into an eternal glory...I cant imagine the alternative...I been blessed in many ways and have been thru countless difficulties...but I know he will not forsake me... I have witness miracles and know that he exist and his love surpasses anything we can imagine...I know it is his will not mine in this life...I totally trust his ways...Bless You My Brother!!!
I hope that the Lupron and the Zytiga will beat your metastasis so that you can live for a while. If your prostate is normal then where dit the metastasis come from?
Yes but your PSA was very high, mine was sort of low but it doubled too fast (45 days) but DRE was normal. Half of the biopsies were cancer on the right.
But later found on both sides but, no metastasises.
Aboout 2 weeks ago, I was diagnosed severe depression. My brain does not accept what had happened to me since 2019. Chronice Renal Insufficency Grade 3, Lymphoma of Marginal Zone in the bone marrow, Agressive Prostatic Cancer Grade 3 and now Severed Pulmonary Emphysema Grade Gold 3.
All of it in less than 18 months.
I am now on Sertraline 200mg/ID and being followed by a psychotherapist next week.
Cystoscopy next Monday and Flue Vaccin on November 28 2020.
I do not have any. Parents poor so denture at 14 y.o (cheaper than paying dentist many time). And I think the put some clips for my vasectomy over 24 years ago.
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