The only times I ever hear patients regret the initial treatment decision (whether prostatectomy, radiation, active surveillance, or ablation) is when they didn't take the time to investigate all their options before deciding. Even very high risk prostate cancer (non-metastatic) is slow to progress. There are now several studies that show that men who rush to treatment do no better than men who delay treatment for many months. I just updated this article with the latest studies:
I also believe that we make more rational decisions after we have taken the time to let our emotional temperature come down.
I couldn't agree more! I thought I provided my update but can't find it, just I apologize if this is a repeat:
I have my RP exactly 2 weeks ago. I decided on RP for many reasons...my interpretation was that an RP has more negatives upfront but provided for better outcomes a year or 2 down the road. Believe me, the idea of 5 days of cyberknife radiation, and done, was very appealing. But I had 'unfavorable intermediate' and was told that with an RP, should there be a chemical recurrence, radiation was an option. Also with an RP they have the gland to closely inspect post-surgery, and in my case, the results were better than I hoped for, and was downgraded to 'favorable risk.' (I'm not sure what the T score was, but was better than their prediction). Also with RP the PSA is a very precise measure, where with radiation it's more of an art than science.
There was partial nerve sparing on both sides. So now I'm in the rehab phase. I was sent to a 'penile rehab urologist,' Dr. Carrasquillo in Waltham suburbs of Boston; he is affiliated with Beth Israel) and saw him before surgery and have an appointment after. So I'm doing what I can do, and am ok with that. An interesting (maybe unfortunate) tidbit....this rehab urologt was the ONLY doctor of the 11 that I saw (the standard group of 3 at MGH, BIDMC, BWI/Dana Farber is 9, plus 2 more) that asked about sexual orientation. That's why I'm so grateful for this site, it has been a huge help in keeping me stable and on course for the last couple of months.
A special thanks to Tall Allen for your seemingly unlimited knowledge.