New to the Community

Hi

I am 57yrs young back in September 2017 I had a radical prostatectomy done by the da Vinci robot I had a Gleason score of 8 and I was told it was a highly aggressive type although my PSA at the time was only 4.5 at its highest. Thanks to me going to the doctor's for a bad back and the Gp running some bloods on me I would probably still be un aware of my situation I find myself in the surgery was a none nerve sparing surgery I still find myself at this time incontinent things seemed to have slowed down on things getting any better in that department. Before having the surgery I still have the surgeons voice in my head saying even with surgery I will still probably need radiation treatment in the next 5 years, this is still playing on my mind my last PSA reading came back at 0.03 last week unrecognisable they say but if it was surely it would be 0 if I was able I would have radiation treatment just to make sure and would give me so much more peace of mind knowing. I had tried everything to stop it instead of waiting for a reading to say yes it's back. Am I being stupid with my train of thought it really is doing my nut in. Sorry to go on this was supposed to be an introduction not a moan.

[GoEZ]

Hi Kowolskie, I’m new also but your story is so close to what happened to me. I was 50 when I got the news I needed surgery (57 now). I was told I needed radiation and hormone treatments. This cancer is not a for sure thing. You never get the firm idea you are doing right till sometime years after you pull the trigger. No one will give you a for sure answer because everyone is different. Every man responds differently to treatment. Most of the time everything is reactionary. You take a test, make a move, and wait for the results. If it works you do nothing till it stops and then take a test, make a move, and repeat. I have been wrong every time I tried to predict my future. When I thought things were good and I was getting better I was knock down hard. When I was sure I was going to die soon, I was told there was nothing going on, be happy.

This will be hard but make a decision. The longer you go undecided will only make it harder to make one. All the worry does is destroy todays happiness. You will come to know your cancer and how it reacts to treatments. You will get to know your side effects and how to live with them. You will learn about shorting your vision and enjoy today.

Hope this helps. Good Luck.

[Hidden in reply to GoEZ]

Hi sorry it's been a while. And I haven't got back to you sooner thanks for your reply sorry you are here on this site wishing you all the rite decisions for the future.