Any experiences with colesevelan? - Pelvic Radiation ...

Pelvic Radiation Disease Association

665 members350 posts

Any experiences with colesevelan?

Lon01 profile image
4 Replies

A question about colesevelan?

Hi All,

I've finished treatment for cervical cancer, have had long lasting symptoms, a GI specialist has prescribed colesevelam. What experiences have people had with treatment?

Thanks

x

Written by
Lon01 profile image
Lon01
To view profiles and participate in discussions please or .
Read more about...
4 Replies
janfarrugia profile image
janfarrugia

I have been diagnosed with bile salts malabsorption and have been prescribed Colesevelam but unfortunately for whatever reason it doesn’t help me at all and actually makes my diarrhoea worse. But I know many others on this forum find it invaluable. I hope it works for you

SpaghettiBetty profile image
SpaghettiBetty

I’ve also had Colesevelam in the past, I think I was on 6 tablets a day. My gastro said it can be a bit of trial and error getting dose right and might need to be increased so keep going back if it’s not working.If they’ve established you have bile acid malabsorption they may need to tinker with dose and brands . I also tried Questran and Questran light (apparently the light version is better ‘tolerated’ by people with PRD) but in the end I seem to manage better with loperamide (can be controlled with codeine I believe) but it is very individual as to what works.

Hope this helps! x

Blue_Hawaii profile image
Blue_Hawaii

I have had good experience with colesevelam . I was prescribed to take 2 x 3 times a day , I’ve reduced to 2 x twice a day

With out it I’m not sure where I’ll be

Hoping will work for you

Please take care x

Blue_Hawaii profile image
Blue_Hawaii

I’m still am x

Not what you're looking for?

You may also like...

Any problems with unsupportive friends post-cancer?

I've felt my friends drift away over the past three years, I know I've been difficult to be with......

How can I get a PRD diagnosis when my GP is useless

Had stage 2 anal cancer in 2015. Treatment was 6 wkeeks chemoradiotherapy. NED since. However I...

Recent changes

I had radiotherapy and brachytherapy 15 years ago for an endometrial cancer that had metastasized...

The gift that keeps on giving.......

I'm about 4.5 years post chemo-radio treatment for cervical cancer and have become used to...

Chemorads/Brachytherapy late side effects

Just wondering if anyone else experiencing the same? I’m now 4.5 years out of Chemorad treatment...