I got my second AZ jab today, AND after 50 years of undiagnosed pain, "painful lumps?" was it Neurofibromatosis NF2 in 2006, three surgical removals, one the size of a walnut on my spinal cord. Finally diagnosed in 2017 as Schwannomatosis NF3, by a neurologist! Then today finding my 'diagnoser' has now got her own department to treat both NF2 and NF3, in the same hospital where I have my epilepsy specialist, and being put down for an appointment to see her! Not a bad day!
An interesting day? 2nd Covid jab and... - Positive Wellbein...
Positive Wellbeing During Self-Isolation
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An interesting day? 2nd Covid jab and after 50 years finally got a consultant for my Schwannomatosis!
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Adlon57
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Now that's real progress Adlon57. You must be so glad on all counts! 👍
Adlon57• in reply to
If I had my PIP benefit back, then I MIGHT be able to celebrate?🥴🥴🙄
That's really good news Adlon, I'm really pleased for you. x
Fantastic news. Neurology can be tricky... I went undiagnosed for a few years, went in for all sorts of things including a surgery, and after many years got some real improvement. Some neurologists are more excellent than others! I'm happy for you!
Adlon57• in reply to
Thanks Wallowa, I've finally got an appointment for a medical condition I've had since 14, in 1973, and now 11th May 2021 will be able to discuss my own medical history of my own particular Schwannamatosis symptoms! I hope she has a BIG notebook ready for me?👍👍🤗🤗
excited for you!
Adlon57• in reply to
Thanks very much! [actually it was 1970 when I was 14, side effects of my 2nd jab last Tuesday has not fully kicked in?]👍👍
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