Tuesday, A Failure: I am only just now... - Positive Wellbein...

Positive Wellbeing During Self-Isolation

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Tuesday, A Failure

8 Replies

I am only just now able to write about my experience yesterday. I realise, that I did not get a second opinion about my husband's health condition. A second opinion should be given at a different hospital, and by a specialist who is not a colleague of the original specialist.

I also did not realise that there would be a third person involved during the consultation who was sat taking notes of all that was said. It actually felt more like an interrogation as to a consultation. I was also not allowed to go into the consultation room until my husband had been seen first. This left me in the waiting room for at least over half an hour.

I was finally invited into the room, but my husband was still present and I was not given any privacy to convey what I wanted to say in private to the consultant.

As for the discussion upon the amount of money that we had gone through, plus showing the receipts, none of this was taken into account. The medication issue was not properly addressed, and I was left without any guidance as to how to cut down on Michael's medication, or even get a change of medication. Consequently, there are serious consequences to withdrawal of his current medication.

This consultant said that I would reach burnout if I was not careful, to which I replied 'I already have reached that point.' I said that I could not cope for any longer with the current situation which has been going on for nearly three months. His reply, was that 'I was taking on too much.' Under the circumstances, this is unavoidable, as I am the sole carer for Michael.

Recommendations for my husband included, going for daily walks, doing some dusting, taking up a hobby etc, all of which are an impossibility as Michael just sits in his chair all day. I did ask about the long term prospects for Michael in his current state of health, the reply was 'I think that there is a bit of life in him yet.' At this point I wanted to go over and throttle this man. As for the situation with our car, the consultant suggested that Michael should try driving around locally for a while, and then see how he felt! All of this after he crashed the car, and it is still awaiting a repair.

I just wanted to walk out of that room and never return again. I really think that humanity stops with psychiatry. I am sorry that my post sounds so gloomy, but I feel totally washed out today. On top of that, I then went into a supermarket only to discover just how many of the shelves were being emptied. Tinned foods, toilet rolls, all of the usual panic buying items. I just need to hide away from it all, but the thought of another national lockdown is too much to bear, especially with Michael being so ill as he is, and no one being able to help us. I do thank all of you for your prayers and good wishes, as you are all so kind. You are the only bright spots in my life at present. Thank You.

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8 Replies
leo60 profile image
leo60

That is awful. I so feel for you, but I don’t know what to say 😢

I hope someone comes up with something useful, meanwhile, take care, love and hugs, Laurie xx

Jennymary profile image
Jennymary

Words fail me on the hospital appt, but I'm sending in this message, a bundle of love and hugs that will be here for as long as you need them xxxxxxxx❤️❤️❤️❤️

ddmagee1 profile image
ddmagee1

I am deeply sorry, that it has come to this for you! You probably feel you are between a rock, and a hard place. Unfortunately, I have been in a somewhat similar situation, where a family member, had become very difficult to handle, and I had major concerns. When I turned to the psychiatry profession, here in the USA, for help, I got extremely disappointed, because I got ‘suggestions’, but not practical, real life solutions! I learned long ago, that if you go to a Dr’s colleague, for a second opinion, you could get disappointed. I get second opinions, by going to a different organization. You may not be able to do that, where you live, but it’s worth checking it out. You should talk to your General Practitioner maybe, and explain your needs, and your husband’s situation. Perhaps the family Doctor, could give better advice, on what you can do! You need help, for sure! Wishing you the best of luck!

Troilus profile image
Troilus

I have absolutely no experience that I can bring to you to help, but I can understand your frustration.

I have found this, which might help.

bipolaruk.org/ecommunity

Maybe there are people there who have similar experiences and might be able to give you some help in the next steps.

Just sorry I can’t be of any use to you.

I'm sorry, I was holding out so much hope that yesterday's meeting would bring you some help and peace of mind, but you must be left feeling even more dismayed than you were before and wondering where you go from here? So disheartening! I just don't know what else to say I'm so upset for you xx

springcross profile image
springcross

I'm so sorry to hear this 01776, what an absolute nightmare for you. These so-called specialists seem to have absolutely no idea of what people who care for patients have to go through. Have you had any discussions with his (or your) GP and does he/she know what is actually going on. To tell your husband that he should try driving locally to see how he felt (he oviously didn't read how that went), do a bit of dusting, go for daily walks, he already tried that in the middle of the motorway didn't he, it beggars belief and to be honest, they sound like a pair of clowns to me. It's laughable almost to hear he said to you that you're taking on too much! I think you've already tried the Mind and Bipolar organisations haven't you. I really feel for you as you must feel so alone in all of this- do you not have a friend to talk to, someone to vent to who knows you? The only thing I can suggest is that you try the GP yet again and relate all what was said as I'm at a loss to understand the attitude of these so-called psychiatrists, other than they seem to need retraining to me. I can only wish you all the best 01776 and hope you get a turn for the better very soon. Please keep in touch. xx

bobbybobb profile image
bobbybobbAmbassador

You must feel exhausted and very deflated. It's difficult to know what to suggest but If I was in that position, I think I would make a formal complaint through PALS about their lack of guidance and support and if you think your husband is a danger driving because of his condition, the advice they have given you is dangerous. As ddmagee1 has mentioned, a word with your own GP might be useful. To offer you no solutions is really like you doing their job. I hope some help will come at some point. 🌷

Sops profile image
Sops

So sorry to read this, my heart goes out to you,

Sopsx

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