Being a reasonably fit and active 71 year old nothing could have prepared me for the PMR experience.At my age I have a touch of arthritis in my most active joints, so when my shoulder muscles started becoming painful last August I could not work out what was happening - it felt if I had walked into something or fallen out of bed and bruised my self, but I hadn't, mobility was the next thing to suffer- difficulty in getting out of bed, dressing, tying up shoe laces etc became really difficult.What really clinched me seeking advice was a very high fever I had - as if I had sun stroke.
Off to the Doc who immediately sent me to the local Path Lab who extracted sufficient blood to carry out 17 tests out of which 3 showed evidence of PMR. Within minutes my GP had me on Pred at the rate of 60mg's/day , within 24 hrs I felt great - as if by magic I had no arthritis pains either, life was great!! no it wasn't - I had run out of puff - no energy to speak of at all, I felt like a battery that had lost all it's power it was no good pushing your self, their was nothing to push.
Very gradually I have reduced from the original 60mg's/day from the beginning last Aug down to 10mg's/day, I have to say that on occasions I've reduced the dosage too fast and have to increase for a day or two. I have only once forgotten to take the Pred and it was a really painful experience.
It is only in the last 6 weeks that I have seen a Rheumy and on the two occasions he has reduced Pred intake by a large margin, but at the same time giving me a 120mg's jab of Depo - medrone - this seems to be doing the trick.
My two major issues are weight - I have put on at least two stone - I think this is beginning to come off now since I have reduced the Pred dosage. Energy level is the other issue and since I still work that really bugs me