Hi everyone, hope we are all doing ok.
I have been up and down over the past few weeks. I eventually had to increase back up on the pred to 20mg as advised by my rheumy helpline then a week ago I dropped by 5mg to 15mg again as advised. I knew it was a huge drop but I was back to see my consultant yesterday so I wanted to show him how bad it gets.
Anyway had a really bad weekend but I hung in there and needless to say by the time I saw my rheumy I was not as bad, typical. So as my crp is up to 29 again he knows that the MTX is not working for me. He toyed with the idea to increase it to 25mg but because of my hair thinning and already on folic acid 6 days a week he decided against it. So instead he has added another DMARD in Hydroxychloroquine 200mg twice daily. He said it works well with MTX and to try it. However as my crp is not going down and I flare every time I reduce the pred he has kept me on 15mg pred til I go back in 3 months. I thought this was funny as at my last visit he wanted me off the pred as soon as poss.
I asked about my swollen neck and shoulder muscles and he said it was the pred causing it along with my furry face lol.
Now because of all the pain I get in my legs from hips down I asked him if there was a possible elment of Fibro added in as the leg pain did not really fit in with the RA or PMR well not all of it anyway. He confirmed that I had got a degree of fybro also to which I laughed and said "oh why not, one more ain't gonna matter"
So I left with another illness and another med to add to my smartie box
The new med can take up to 12 weeks to work also so ibuprofen it is then til it does.
Oh the joys