I was diagnosed with GCA in April 2012 after losing sight in right eye. Started on 80mg of Prednisolone, now just down to 14mg a day. Before diagnosis of GCA by Ophthalmologist in A&E, I believe I had PMR for 18 months although this was never confirmed - inflammatory markers were checked in Oct 2010 and considered satisfactory, never checked again. I did have pains in shoulders (then attributed to frozen shoulder, and now confirmed as severe osteoarthritis, also in knee) and a lack of energy and being completely wiped out if I did too much, which was put down to age. Following diagnosis and after badgering my GP I did see a Rheumatologist a couples of months ago, who categorically told me I did not have, and have never had PMR and even if I had it would have gone by now as it only lasts some 18 months! His main aim appeared to reduce my steroids (when I saw him I was on 20mg) irrespective of the GCA. When I asked him why the lack of energy and feeling shattered when I did too much had returned, he said it was due to the steroids, and as they were reduced, those "side effects" would reduce as well! Either he doesn't understand the condition, or I don't. I can put the pains in my shoulder and knee down to osteoarthritis, but the lack of energy and feeling shattered, is that due to GCA or PMR or both. Any advice would be much appreciated.
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