Pred head! I just managed to delete my carefully composed post somehow by scrolling down!%#¥&@!!
I’ll try again:
PMR/GCA started 40 mg last Jan.
Short version: I’ve been at 20 mg for 5 weeks, 5 weeks filled with family and financial crises, doing OK except for some hip and knee pain. An x-ray in July showed mild to moderate osteoarthritis. The knee has been mildly bothersome before PMR/GCA. It’s worse at night and in the mornings but hangs around later too, it has hampered my walks. Tylenol helps somewhat. Left hip, right knee, mild right shoulder. Also have mild scoliosis.
I’ve also lost some muscle most in right thigh, and a few pounds. Similar to when PMR was diagnosed.
Was checked by opthomologist last week, optic nerve fine, no signs of glaucoma. I do have blurry vision and “double type” at times, worse in the morning. My glasses don’t fit right which doesn’t help this. No GCA headaches.
Question: could this pain be something else other than PMR? It feels more joint than muscle related. Tylenol and CBD oil sometimes help but don’t completely take away the pain. I’ve heard bursitis mentioned here. What should I get checked out?
I’d like to not involve my rheumy as she has basically left me on my own after stressful pressure to reduce on her schedule during my last appointment in July. I don’t see her again until October.
Should I go ahead and reduce from 20 to 17.5? She has not prescribed 1 mg pills.
Thanks for reading this and for all comments.