Hi,
I have been diagnosed with GCA two weeks ago (March 2025) and have joined this forum to help understand all the overwhelming symptoms and feelings that I am experiencing. I had never heard of GCA and feel this condition will change my life - I am currently on a 2-year plan of prescription tablets - tapering the Steroids (50mg currently). Looking forward to reading and hearing from other members.
welcome,
Have already given you my intro post- but will add again for completeness and for other newbies who may read this post.
healthunlocked.com/pmrgcauk...
If you have a look around the FAQs- they is plenty of others GCA experiences-
healthunlocked.com/pmrgcauk....
As an ex GCA, I’ll just say please don’t get fixated on the 2 year plan… GCA is likely to have other ideas on that score. 😊
Thank you so much - its really interesting reading.
Hi and welcome!
And to reinforce - don't get too fixated on the 2 year tapering plan. That is likely to be a conservative estimate, longer is very common and if you aren't off pred in 2 years it won't be anything you have done or not done.
Hello, like you I had never heard of GCA or LVV before being diagnosed last August. Unfortunately I have a rather arrogant consultant, who doesn’t want to discuss things and seemed to expect me just to agree with what he says. So I have found this forum such a valuable support as I’m sure you will. Drs and Consultants may know all the theories but the experiences of people who have lived with and managed this very strange illness have really helped me to better understand what I might be dealing with. I’ve learnt it seems we can all to have very varied symptoms and respond differently to the medications we are given. So if there’s anything you want to know, however trivial it might seem you will always find someone willing to help, give encouragement and reassurance by knowing you are not alone. My best wishes to you
I have replied to your Chat message, but have noticed recently that HU notifications from that are a bit hit and miss.. so perhaps you’d like to check it please.
you will find a wealth of information on this forum and caring support.
Morning LGN,sorry to hear of your diagnosis,,you are not alone anymore!There a lots of us on here with GCA,including Dorset Lady who I refer to as one of The Wise Ones.,Never feel that whatever you are feeling whether it is being overwhelmed,sad,worried,that you will not be listened to on the forum.We all support each other,In the early days it is scary,but step by step you will get through it with your new found help!Just try and remember that Prednisilone adds to these feelings as well.All manner of emotions seem to come out of nowhere and it can be a worry but just ASK on here if you have any concerns ok?Sending a hug ,xx💐💐💐💐😜
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