Hello everyone from cold Denmark...
Do you all also experience pain in your hands when using them for tasks like pumping cleaning spray from a bottle or other repetitive moovments?
After about ten pumps, my hand becomes completely stiff and won’t cooperate, as if the muscles are quickly exhausted. The same happens with my thighs when I go for a short bike ride – they feel worn out very fast.
Yup - to using the hands at least, I don't ride a bike! Nor do I use cleaning stuff in bottles - I leave that to the cleaner.
Ohh – I thought that hands were not often involved. I will pass on these answers to my cleaner—my husband. However, he still needs some training when dealing with bathrooms. Best throw in a picture of my swollen hands as well 😄
I've linked some articles about hand involvement in PMR in another thread
healthunlocked.com/pmrgcauk...
towards the end of the thread.
As my reply says - it has been known since 1888 when PMR was first described so why rheumies don't know about heaven only knows!!
I have trouble pressing bottles for shampoo, make up etc. even. In fact my sister and friends do too who do not have PMR. My sister says it is arthritis. Like PMRpro I get someone else to deal with the cleaning products and the cleaning!!
When I had PMR for the second and third time, most of the pain was in my hands. Until I was put on steroids, I was having trouble dressing myself and even once steroids had reduced the pain, using my hands for anything strenuous would start it up again. When I forgot to take my steroids the morning we left for our holiday, I could barely manoeuvre my luggage once we got to the airport.
Now I avoid anything that puts strain on my hands and intend to do that even after the PMR has gone away again. Currently on 5mgs daily and planning to reduce to 4mgs this week. Probably best to get someone else to help with the household cleaning if you can, or just do it in small sections.
Thanks - so you say that straining you hands can cause a flair? That may explain a lot for me....
Definitely it was straining my hands that started my latest bout of PMR. In my case, it was Christmas flower arranging at our local castle. I'd done it for years without a problem, but a year ago, by the time I had dismantled the real flowers and replaced them with fake ones, my hands were so painful I could have cried. That was January 2024 and I am still on steroids. I can walk for miles, but over exerting my hands seems to be my weak point. I hope that if I am careful not to do it in the future, I can avoid this debilitating condition coming back again. I know however that there are no guarantees. I think the key is to stay active but don't overdo anything. If it hurts or you feel exhausted, just stop and rest. I hope you get better very soon.
Bladder pain...is this PMR?
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