polymyalgia: have polymyalgia hands are sometimes... - PMRGCAuk

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polymyalgia

Redcottage profile image
11 Replies

have polymyalgia hands are sometimes painful

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Redcottage profile image
Redcottage
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11 Replies
DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Hands can and are affected in PMR despite what some doctors may think.. does anything in particular trigger the pain?

PMRpro profile image
PMRproAmbassador

Hi and welcome!

Mine too - they were sore in the early days with PMR, my feet as well, and it is due to synovitis in the joints. Now I think the hand pain is arthritis - the pred dealt with the synovitis.

Nextoneplease profile image
Nextoneplease

I have pain my left hand only. The finger joints have very painful bony nodules and my whole hand is often hot and a bit swollen. Right hand doesn’t have those symptoms but thumb is arthritic and stiff.

I attribute this to arthritis but I may be wrong.. …

dmart7 profile image
dmart7

My flares nearly always begin with bilateral hand pain followed by the shoulders, also bilateral. The hand pain focuses on the outer (ulna) half of the hand and is very uncomfortable. I can feel it in the finger joints but it is not confined to them. I suppose it is an open question whether the hand part is PMR or whether it is something else (ortho or neuro) that is partially being suppressed by Pred.

PMRpro profile image
PMRproAmbassador in reply todmart7

Possibly swelling around the ulnar nerve?

"Ulnar tunnel syndrome is carpal tunnel's lesser-known cousin. Like the median nerve passes through the carpal tunnel in your hand, the ulnar nerve passes through Guyon's canal at your wrist."

webmd.com/pain-management/c...

dmart7 profile image
dmart7 in reply toPMRpro

Yes – it is things like that which would be the “something else” I mentioned. It doesn’t conform closely to the normal course of ulnar syndrome….but that could be because it is suppressed by Pred.

Sandmason profile image
Sandmason in reply todmart7

My hand and wrist pain started suddenly, about a year in. There is a very good article in UpToDate.com, 2004, paywalled now, that stated clearly that hands and wrists can absolutely be affected by PMR, "sometimes exuberantly". I didn't know that as the talks by rheums on YouTube, (there are many) never mention it!

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toSandmason

Hands and PMR often discussed on here...

PMRpro profile image
PMRproAmbassador in reply toSandmason

These mention hands and wrist pain

advancedrheum.com/services/...

saintlukeskc.org/health-lib...

Distal musculoskeletal manifestations in polymyalgia ... by C Salvarani · 2000 Clinical and Experimental Rheumatology

clinexprheumatol.org › article

The last one shows how it was mentioned in the original work by Bruce in 1888

"Bruce in the first published description of PMR in 1888, noted distal findings in 2 of his 5 patients (4). Case I had symptoms "affecting his hands and feet as well as his wrists and ankles". Case IV had symptoms that laid "hold of his arms, shoulders, and hands which swelled and stiffened, and lost so much strength that he could not put his hand to his mouth ..."

and concludes

"In summary, distal musculoskeletal manifestations are common in PMR. Peripheral synovitis is most frequent, but distal symptoms of diverse types such as carpal tunnel syndrome, isolated tenosynovitis and distal pitting edema often occur. Physicians need to be aware of these various manifestations in order to make a prompt and correct diagnosis and institute early the appropriate therapy."

And yet we are repeatedly told that PMR doesn't affect hands.

Tappo profile image
Tappo

Me too. Apparently pain in distal joints can occur in 50% of people with PMR.

Musiclady18 profile image
Musiclady18

I too have painful hands. Went to the rheumatologist and she recommended this site arthritis.ca/living-well/20.... I have been doing the simple hand exercises and have found them very very helpful. Pain seems to not be as painful! Good luck !

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