Acid Reflux

[Sunshine8888]

A couple of months ago I had serious attacks of acid reflux, I’m now on 40mgs of Pantoprazole per day. Whilst I’m not having serious episodes of acid reflux my throat, larynx, oesophagis burn the whole time, at times the glands/ muscles under my chin are extremely painful, also both sides of my cheeks are very tender. what is going on? Any advice, I’m so worried. I’m on 7mgs of Prednisone daily

[SnazzyD]

Can’t say what is going on exactly, but this doesn’t sound like it is simple reflux. Your glands are raised too and pain is not isolated to the oesophagus. I think you need a doctor to see you sooner rather than later, sorry.

[Sunshine8888 in reply to SnazzyD]

Thank you Snazzy, my doctor has referred me for an ultrasound on my abdomen and neck and throat area. The doctor thinks it is to do with steroids and acid reflux however I’m not so sure

[SnazzyD in reply to Sunshine8888]

I like to know what exactly is directly the Pred here. What’s the lead time on the scan?

[PMRpro Ambassador]

Have you seen your GP since this started?

[Sunshine8888 in reply to PMRpro]

A couple of times over the phone then three face to face visits, which led to doctor referring me for two ultrasound scans, one for abdomen and one for throat and face. I’ve had several blood tests as well. First scan on Monday.

[SnazzyD in reply to Sunshine8888]

Good

[PMRpro Ambassador in reply to Sunshine8888]

Good. Do tell us what transpires.

[ChrisBeeLoop]

This could be a complete red herring but Google EOE medical abbreviation and see if any of those symptoms match. My neighbour developed it last summer and is currently on a UK drug trial. Also, I know this is obvious, but have you taken a good hard look at your diet?

[Sunshine8888 in reply to ChrisBeeLoop]

I’m only drinking warm water, I’ve cut out all acidic foods and spicy foods, really quite limited in what eat now

[icu2]

acid reflux does occur with pred. i use the anti acid/ reflux Nexium when my issues occur. not constant. take it until my issue stops give a bit of time and then take the pred without. of course it fluctuates but i would say i have to resort to this only a few times in a year. and have found i can often control it now with only a few days on the nexium.

i would add that my first attach with gastro reflux was horrible..this was previous to pred…could not lie back. cancelled dental appointment. slept sitting up and raised my bed putting a 2x4 under headboard. this kept the a id down . this took a while to settle…maybe a month, a long time ago

wish you well.

[Sunshine8888 in reply to icu2]

🙏for sharing

[Sunshine8888 in reply to icu2]

I know exactly what you mean, it has been quite scary and the pain is unbelievable

[Missus835]

My GERD has been acting up for just over a month. Unsure what kicked it off, unless it's the Zoledronic Acid infusion I had in December '24. I take 2 ppi's a day which aren't helping at all. It's very bad. Everything is burning. Pharmacist suggested adding a H2 blocker to the mix. I'm going to try slippery elm lozenges to coat my throat, esophagus and stomach. Also, I've just finished a course of Nystatin anti-fungal liquid for oral thrush, which they think was caused by the acid reflux. My throat is still store. Tongue looks better. Eyes were/are burning as well. Could be Sjogrens, but GP just gave me a blank stare when I suggested it. I don't think she's ever had a case like me...or maybe she would be more comfortable if all her patients were not sick. I do have a lot going on.

[Sunshine8888]

Yes the burning is just incredible, I really don’t know what to do about it