Tight feet : Has anyone experienced tight feet? I... - PMRGCAuk

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Tight feet

Bachfugue profile image
6 Replies

Has anyone experienced tight feet? I feel as though my feet are bound with a steel bandage, and feelings of slight numbness and occassionally ‘pins and needles’. And they are cold too. It gets worse as the day progresses. I saw my Rheumy today for a long awaited check up and mentioned it. He couldn't offer any explanation saying that the pulses in each are fine. I am in my sixth year of PMR taking 6.5mg Pred and finding it difficult to reduce further. So in for the long haul.

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Bachfugue profile image
Bachfugue
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6 Replies
Susan1705 profile image
Susan1705

I did have issues with my feet last summer. I was on Leflunomide as well as pred and is a side effect. I saw my GP who checked my feet and rang the rheumatologist. Stopped the leflunomide and feet returned to normal in a few weeks. Just in case you are also taking

marionofnorwich profile image
marionofnorwich in reply toSusan1705

Yes i do. I am on 3.5mg and nearly jnto 5th year. Lower legs ankles and feet are all tight. I dont get cold feet or pins and needles and like you pulses are ok. But muscles are tight especially outside edges and along the top. Not so much across though. Not found an answer in spite of exercises, physio, changing medication etc, Though i suspect vitamin D helps

maxismall profile image
maxismall

Yes. That's a good description of my symptoms - after extensive tests revealing nothing, neurologist has said idiopathic peripheral neuropathy. It has now spread up to my knees & is worse in cold weather.My feelings are, it's a side effect of pred &/or PMR . The medics disagree. It started 3 months after starting pred but its presentation has changed in the 3 years I've had it ie I have more feeling in the soles of my feet now but more of your steel bandage across the ankles & up the legs.

Brittleasthma47 profile image
Brittleasthma47

100% that’s how my feet feel . And red hot 🔥

PMRpro profile image
PMRproAmbassador

Yup - not now but in the first years of PMR when I wasn't on pred I used to say my feet felt like I was wearing shoes a couple of sizes too small or like Chinese ladies feet being bound up to keep them dainty. I also felt as if I had insoles made of a mixture of pebbles, gravel and broken glass mixed together!! And I know several others have described it in much the same way.

For me it all improved over about 3 months after starting pred. Is it possible that you are verging on a flare or has it been going on longer than that?

A friend developed neuropathy with LEF but I don't think I've ever heard her describe how it manifested. It improved once off LEF and then she went back to LEF but at a lower dose. Its role was rather mixed though and it has been given up.

Joseph14612 profile image
Joseph14612

Mine are also that way when my glucose is high.....I completely stop bread, etc and my feet are much improved. I do occasionally eat high carb food and my feet remind me...I am on prednisone 14 mg for PMR/GCA...pred will raise your glucose level.

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