First relaps…..

[Rose8950]

We’ll so much of my tapering down of my 20 mg to 15 and 17,5 mg over two days on my rheumatologist’s recommendation. Got up this morning feeling achy and shaky all over, shoulders, neck even trouble walking. Phoned my doctor, ordered to take an additional 5 mg to the 20 I had taken this morning. Stay at 25 mg for the next 6 days and phone him to see how I am doing.

I’m sure I’m not the first to experience this, after that 5 mg dose, I’m starting to feel a bit better.

Happy New Year to this wonderful encouraging community.

[piglette]

Sometimes I really begin to wonder about some of these doctors.

[DorsetLady PMRGCAuk volunteer]

You may need longer at the increased dose, we usually recommend at least a week, sometimes two as per flare protocol - so see how it goes..

here for your info - healthunlocked.com/pmrgcauk...

Plus as already advised, a much slower taper once you have got things back under control…

[Rose8950 in reply to DorsetLady]

Thank you for your kind advise. Since I’m only seven weeks in this PMR journey, I am learning to deal with this thanks to this community.

[DorsetLady PMRGCAuk volunteer in reply to Rose8950]

Good, but it would be better if doctors weren’t in such a rush to reduce patients… but it’s the same the world over.l.

[Angelsmummy]

Slowly,slowly catchy monkey!You aren’t the first and no doubt you won’t be the last Rose.,Happy New Year to you.,x🍾😜

[PMRpro Ambassador]

If it were me, I think I'd be looking to stay at the 25mg dose you are at now for a few weeks, not just 6 days. It used to be considered good progress if you were at 20mg in 6 months - weeks never figured. The terror some doctor exhibit about pred does no-one any favours - above all the patient whose health they are playing with.

[Charlie1boy]

I stayed at a high starting dose for just over three weeks. In my view, you really do need to get that inflammation under control before contemplating any reduction. My motto was not to taper down if I was aware of any of pmr’s symptoms. Patience, patience, patience!

Good luck.

[GHDirect]

Hi Just for your info. I was diagnosed with PMR Nov 24 and prescribed 20mg a day of steroid. Which worked. Then advised by GP to drop to 15mg within 2 weeks that was far to quick as I suffered pains and chose to go back to 20mg. Since then mid Dec GP has suggested 17.5mg which has worked. Now planning to 15mg again.

[PMRpro Ambassador in reply to GHDirect]

You really need 3 weeks between dropping the dose. Some need 4 weeks.

[DorsetLady PMRGCAuk volunteer in reply to GHDirect]

Agree with PMRpro -and see this penned a few days ago -

healthunlocked.com/pmrgcauk...

[Rose8950]

I will stay at 25 mg until I feel much better , then will take my time to go back to 20 mg. This first flare up has really gave me a lesson of what PMR can do.

Thanks for your advice.