Still on 15mg: Well 2024 was a nightmare and... - PMRGCAuk

PMRGCAuk

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Still on 15mg

Doublef profile image
8 Replies

Well 2024 was a nightmare and grieving for my wife. I cannot get past taking 15g of pred even though I have now been taking Leflumin for a while I don't suppose all the stress has helped. I have now moved in with my daughter.

Happy new year all

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Doublef profile image
Doublef
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8 Replies
PMRpro profile image
PMRproAmbassador

All the best for 2025 - for you and your daughter! Hope it all goes well.

The stress won't have helped - but if leflunomide isn't making a difference, discuss it with your doctors.

random901 profile image
random901

All the very best for 2025, Doublef!

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Hopefully a better 2025.. and I wouldn’t even be trying to taper in all honesty for a few more months.

Angelsmummy profile image
Angelsmummy

So sad for all that you have gone through D.I really feel for you and your daughter.Glad that you have moved in with her.,you can both get through this together.I am no expert but no way would I taper with all you are going through.I sincerely wish and hope that 2025 brings you peace and is kinder to you both.xxx💐

Pinkcrocs profile image
Pinkcrocs

A very difficult time for you. Sending very best wishes to you and your daughter x🌼

Nextoneplease profile image
Nextoneplease

All the very best to you for 2025 Doublef 🤗

Alebeau profile image
Alebeau

Best wishes for you and your daughter. I was like you many years ago and could not pass 10 mg

Leflunomide helped me get to 5.5 but I had severe side affects and had to stop taking it.

I immediately had to go back to 15 mg prednisone and start the reduction process all over again.

Stress was a huge factor for me but now my stress level is much reduced and I am now on 6.5 mg prednisone with no issues.

Best of luck 🤞

Freya32 profile image
Freya32

So very sorry for you Doublef.I know how you feel.

My husband died 3 years ago next week.

Time lessens the rawness of it but you carry them with you in your heart.

Talk about her to your daughter. She is grieving too. Share the grief..

Remember all the good things you did together as a family.

Walk in the woods when spring comes. Woods are places of healing ,as is the sea.

Later on perhaps plan a holiday together.

Do not think about reducing preds just yet..all in good time.

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