Update from a member in remission from GCA

[HappyDiamonds]

Have popped in after 18 months in remission from GCA to wish everyone a Very Happy Christmas. I still very much appreciate all the help and advice I received on the forum particularly from PMRPro and Dorset Lady and to say life can be good again so keep the faith. I am once more able to enjoy all the things I used to do although a little slower but I am 5 years older too. Even lost 3 stone of my Predweight which is the biggest miracle of all. Still being monitored by wonderful Rheumatology and having infusions for Osteoporosis & spinal fractures but the weight loss has helped considerably with my trochanteric bursitis. Best Wishes to All.

[PMRpro Ambassador]

That's great - do I remember right, are you in Scotland? Or am I havering?

And a very happy Christmas to you too!!

[HappyDiamonds in reply to PMRpro]

No Somerset but you have supported so many of us I wouldn’t expect you to remember. Was pleased to read that you are maintaining on a much lower amount of Pred now. My sincere best wishes.

[123-go]

Pleased to hear you are doing well 🙂. Thank you for ‘popping in’ with this encouraging news.

[HappyDiamonds in reply to 123-go]

Thanks 123, will never forget the support I received here.

[Portobello]

Snap! After 4 years of PMR I was able to taper off Pred 19 months ago. Enjoying life despite inevitable ageing. After 4 infusions for osteoporosis I'm taking a self-imposed drug holiday (my Rheumatolgy Dept NOT supportive). This wonderful forum kept me sane throughout. Thank you and Merry Christmas 🤗

[HappyDiamonds in reply to Portobello]

Congratulations Portobello long may it last for both of us. Sometimes the patient really does know what’s best for them! Agree about the support it certainly kept me going throughout.

[DorsetLady PMRGCAuk volunteer]

Well done…

[HappyDiamonds in reply to DorsetLady]

Thank you. There were times I never thought it would happen but I was always encouraged by reading your story.

[DorsetLady PMRGCAuk volunteer in reply to HappyDiamonds]

Good -I always try and remind those struggling that you will get there -although not sure they always believe it at the time…it can be overwhelming .. 🌸

[Grammy80]

What a wonderful post; so important for all of us to know that remission can happen. 💞

[Angelsmummy]

Wonderful to hear from a fellow GCAer,you have given me hope!Have a wonderful Xmas,xxx🎁🤶🦃🎄😜

[GingerPoodle1]

thank you for this. It’s inspiring!

[Noni71]

You give us all hope as we expect this disease to be with us for the rest of our lives! Suddenly struck me that there is an alternative. We’ll done.