new diagnosis

[Ronzy]

first some great news finally got a blue badge ,a great help

My new diagnosis is Pulmonary Hypertension.

Doctor is making enquiries at Regional pulmonary hypertension services which is based at Sheffield.for treatment might be possible there

Has anyone else got this problem

[PMRpro Ambassador]

That sounds reasonable - and the good news is that, unlike PMR, there is a range of medications that can be used for management and that has improved a lot in the last few years. You should be looked after better than a lot of us are by their rheumy!!

[Ronzy in reply to PMRpro]

Oh, and been accest for oxygen, but still need to go to clinic for them to walk me around etc hope there not long in sending for me .

[Ronzy in reply to PMRpro]

Thanks for that my friend,that has cheered me up greatly 🫠🥰 no end.

And all the very best to you,have a great Christmas xx

🍀🍀🍀🍀🍀🍀🍀🍀🍀🍀🍀🍀🍀🍀🍀🍀🍀🍀🍀🍀

[DorsetLady PMRGCAuk volunteer]

Hi,

Good news about BB - hope it you more chance to get around, and now you have a definite diagnosis at least you can be treated accordingly, locally and promptly.

All the best..

[Ronzy in reply to DorsetLady]

Thanks ,promptly 😢I wish still 6week to wait for oxygen 😠

[DorsetLady PMRGCAuk volunteer in reply to Ronzy]

That’s a bummer.., 🙄

[Ronzy in reply to DorsetLady]

Sure is 🤨

All the best to you 🍀🍀🍀🍀🍀🍀🍀🍀happy new year 😀

[DorsetLady PMRGCAuk volunteer in reply to Ronzy]

Thank you

[Pixix]

Good to hear you have a diagnosis, & you will be helped now. Hope you get your oxygen quickly & that your BB helps you get around more! Enjoy your Christmas now you know what’s happening!!

[Ronzz in reply to Pixix]

Thanks Pixix you are a Star all the best for Christmas🌲🌲🌲🌲🌲🌲🌲🌲🌲

[Pixix in reply to Ronzz]

Keep breathing, Ronzy, that’s the important thing!! S x

[Ronzy in reply to Ronzz]

And an happy new year 🍀🍀🍀🍀🍀🍀🍀

[LCHRISTOP10]

I was diagnosed with pulmonary hypertension without ventricular failure summer 2023 as incidental finding on echocardiogram.pressure 42. D/c’d Voltaran cream application and decreased sodium intake. Pulmonary artery pressure normal 22 6 weeks later on repeat echo. Cardiologist assumes pressure elevation due to side effect of Voltaran cream.

[Ronzy in reply to LCHRISTOP10]

Mm encouraging thanks. My breathing is terrible once I start waking

[PMRpro Ambassador in reply to Ronzy]

Do you mean walking Ronzy? It will be until you get your oxygen - patience!!

[Ronzy in reply to LCHRISTOP10]

Very good.where did you apply the cream

[LCHRISTOP10]

applied Voltaran to hip for bursitis. Occ to shoulder. At times, used daily. When prescribed, gp said no side effects from topical application.