I lost my sister over the BH she was only 63.. and have noticed that my headaches are stronger again. I'm on 15mg injection of methotrexate and now on 9 mg of pred...I'm away next week and her funeral is 11 October....
do I increase pred or do I see if a week away from funeral plans helps settle things
So sorry to hear about your sister - my sincerest condolences 🌸
As your headaches have returned would suggest you initially treat as a flare -see link -and on the increased dose for 14 days and maybe dropping back to 10mg rather than 9mg.
After that, if you feel okay stay at 10mg for a month -but just be aware you may need more as funeral approaches-and if you do then take it.
healthunlocked.com/pmrgcauk...
Hugs 🫂
thank you I think it appears a good idea
So sorry to hear about your sister - hugs. Was it unexpected?
I doubt it is just the funeral plans - even the death of a friend when they are a similar age to you pokes at your sense of place in time. When will it be me? And when it is close family there is all that on top. The stress really can wake up our illness. And once you are below 10mg there is an element of maybe not enough steroid to cope.
The flare protocol will cover both eventualities initially but don't be surprised if it raises its head again closer to the funeral. These long gaps before the process is complete in the UK can be quite agonising. My cousin died just before I had to come back last week, I couldn't stay the extra 2 days it would have needed as I had a hospital appointment here, but the preparations were very promptly dealt with in just over a week: only a graveside ceremony and a celebration of her life at the cricket club - she was a real devotee of cricket all her life!!
Thank you. my neice has L.D so I'm doing alot of the planningit was unexpected
How is she coping?
So right about poking one's sense of place in time. My close cousin (mother's sister married father's brother), we are only 3 months apart in age, is dying of terminal cancer. My partner's health is quickly declining after unsuccessful heart surgery and mother is 102. It is in danger of making me into a hypochondriac, thank goodness for this forum 😘
My cousin, in the same class at school, died in her late 40s I think, of breast cancer. Her sister, a lot older than us, fell a few weeks ago, broke her hip and developed pneumonia, the old man's friend they called that. My husband was only a year older than me and been gone almost 3 years after 2 years of real decline - where does the time go? I still feel in my 20s mentally - shame the body doesn't agree!
Me too, still in 20s, but tripped, walloped head on beam and now have shiner to prove it. 😉 told daughter I was setting new trend - she 🙄 told me I was a liability and she's late 40s! No idea where the time has gone!
Funny - my daughter says something similar even though I haven't fallen for YEARS!
My sincere condolences to you and your niece. I worked in the funeral profession, be gentle with yourself. Grief does not have a shelf life. What is right for you is right. Your funeral director can be an ally, including after the funeral.
Thank you all it's very stressful but it has to be done. x
Nothing I can add to the advice already given, but many condolences and hugs. 🫂🫂
I do send BIG virtual hugs to you, I am so sorry! Be aware that grief and stress are not good companions for us on pred. Follow DL's advice and keep in touch with all of us on this wonderful forum. BIG LOVE>
Good morning Alliekat65!So very sorry about your sister. What a terrible loss.
💐sending love and best wishes x😘
So sorry to hear about your sister. It’s a very difficult time you’re going through, grief is unimaginable pain and emptiness. Sending hugs to you and your niece xxx
Take care
Wendy xx
I recognise your position although I have a different condition, grief did appear to be the cause of my ongoing flare, it seems a natural thing. Each day of grieving will be different but each day is one that you won’t have to do again and new days are ahead packed with memories. I’m sending comfort to you at this time 🫂
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