All very strange and scary - adrenals? Allergic reaction?

[herdysheep]

I posted a while ago about dizzy spells not unlike sea sickness. Last Monday was a very stressful day and Tuesday saw me so dizzy I could not move safely. Bad even lying down. I took 2 extra mg pred and took it very easy. By Wednesday could move about but with poor balance.

Friday night I woke after 1hrs sleep feeling really weird in a way that it very hard to describe. I had pains in various places including upper jaws but non of them hurt more when pressed. No temperature, no apparent racing pulse, but slightly nauseous. My head felt sort of out of it. After about an hour and a trip to the loo I walked about in the house a bit and went back to bed propped up on a lot of pillows. Saturday felt 'not right' but not ill and today - much better.

I'm pretty sure the vertigo type dizziness is down to adrenals being silly, but haven't a clue what was going on in the night time do.

Now in a quandary about vertigo type as you are supposed to report it to DVLA. Do I stay at same dose of pred to avert it, or what? I am still on 5 1/2 which was raised from 4 following the last do.

[herdysheep]

I should have added that there was a bit of churning inside - almost like nerve endings were firing off all over the place. Sounds very jumbled but struggle to describe it!

[PMRpro Ambassador]

Try keeping a food diary. And have you tried self-administering the Epley manoeuvre or one of the alternatives?

Plus, get yourself some antihistamine tablets - Lidl or Aldi are probably the cheapest - and see if 1x daily makes a difference.

[herdysheep in reply to PMRpro]

I have the antihistamine but didn't take one! Will look up self administered Epley

[PMRpro Ambassador in reply to herdysheep]

You have to buy the ticket AND use it!!!!

[herdysheep in reply to PMRpro]

🤣🤣 I looked up the Epley but I couldn't identify one ear or the other! I also have neck issues, so the antihistamine seem the best bet

[SnazzyD in reply to herdysheep]

I can’t decide on the ear half the time but fine doing it for both sides works

[Koalajane in reply to PMRpro]

Hi, PMRPro. I am wondering how the antihistamine tablets help?

[PMRpro Ambassador in reply to Koalajane]

I have had similar experiences - and it is a histamine thing we assume since antihistamines stop it, even once it has started. And HS did say ?allergic reaction - logical way to rule that out is antihistamines.

[SnazzyD in reply to Koalajane]

The ones with -zine on the end can help with vertigo with Cetirizine being the weakest so if that isn’t enough I use Promethazine, though it makes me sleepy but it’s a small price to pay if I’m that bad.

It could have been that your stress was too high for your adrenals for your adrenals to cope with. It made me dizzy and feel quite unwell and feeling generally ‘at risk’. However the dizziness wasn’t the type where if I moved my head the world lurched which is the one that I would use antihistamines for.

[DorsetLady PMRGCAuk volunteer]

That's sound horrible- I had labyrinthitis many years ago so know how you feel - have a look at these, and see if anything helps -

dizziness-and-balance.com/d...

webmd.com/brain/home-remedi...

youtube.com/watch?app=deskt...

PMRpro has given you good advice - hope you can get it sorted.