Drop from 40mgs to 30 mgs side affects

[arvine]

well as I have dropped from 40 to 30 as instructed by rheumy, was started on 40 for one week, re suspected GCA and high inflammation markers(first time in over 6 yrs), then he said drop to 30 which I have done now for 10 days, during which time have felt very strange, not sleeping well, losing balance at times, head woozy, body like lead(no pain) , waiting for MRI results hope this week, question is, was on 4 mgs previously for over 3 mos, then boom! up to 40 then quick drop to 30 after 7 days of 40, so would this big 10 mg sudden drop cause me to feel this way? last advice for him was to stay at 30 for 2 weeks, then big drop again to 20( im guessing depends on blood results, which is scheduled for this thursday) ?

[DorsetLady PMRGCAuk volunteer]

I think we have responded to this in previous posts -saying that some could be due to decrease in Pred -but we are not doctors so you really need to seek medical advice from your Rheumy.

[arvine in reply to DorsetLady]

oh yes you have, thank you, however, just sharing, updating, reaching out, know you are not dr,s but have read many times, several comments, experiences, bits of advice, I am going to try contact my rheumy today, hoping he has results, and can advise on how I am feeling now

[DorsetLady PMRGCAuk volunteer in reply to arvine]

Good...

[Theziggy in reply to DorsetLady]

I don't even have PMR - I have Palindromic Rheumatism - very similar to PMR - treated with steroids. I (with the help of this site) had to convince my Rheumatologist that I had Palindromic Rheumatism, he thought it was PMR

[BarbB]

Yes it is entirely possible to experience withdrawal symptoms when decreasing your dosage of pred. My withdrawals included feeling woozy, nearly fainting when standing up from sitting/lying, headaches, loss of appetite, abdominal pain after eating, heat and exercise intolerance, and fatigue.