Asking for help is so hard.

[TiaPasha]

I hate asking for help and have been struggling with my hair, done the best I can but needed something a bit more secure to keep it under control for walking today. Asked hubby if he could do me a high pony tail without any hair dresser jokes and he kept his mouth shut and did a good job until Dob jumped up to help, before you could say hokie poky tiddly poky she had the hair band out of my hair and was out of the back door. All sorted now after much bribing. Keeps me on my toes I guess.

[piglette]

Are you saying that your hair has changed consistency since getting PMR? I had to cut mine so it was very short as it became rather like a horse’s mane. It actually looked quite funky as it stuck up all over my head!!

[TiaPasha in reply to piglette]

I have been growing it for the first time ever as quite fancy being the mad hair lady. But it is in the way a lot now and still can not lift left arm right up to do anything nice with it. He did offer to do a plait but I declined.

[piglette in reply to TiaPasha]

I had shoulder length hair which was quite greasy and straight. With PMR it became incredibly dry and curly and I looked like Worzel Gummidge! It was quite a relief to get it cut off.

[PMRpro Ambassador in reply to piglette]

Whereas in Covid lockdown mine grew past the awful stage and I decided to leave it. Now have this cloud/mane of white curly shoulder length hair that gains turned heads and compliments all over the place!

[TiaPasha in reply to PMRpro]

That is what I was hoping for but I look like a cross between a beach bum and a cat lady, minus the cat.

[piglette in reply to PMRpro]

I had forgotten about Covid. That was horrendous. I looked like a scarecrow.

[PMRpro Ambassador in reply to piglette]

We didn't get to go partying so I suppose it didn't matter so much!

[piglette in reply to PMRpro]

They reckon fifty per cent of people in UK broke the rules.

[PMRpro Ambassador in reply to piglette]

Only 50%? There were more than enough here but our police are quite robust about suspecting illegal parties AND they carry guns ...

[piglette in reply to PMRpro]

You are probably right. My next door neighbours denied breaking the rules, but had friends and family round daily.

[PMRpro Ambassador in reply to piglette]

I noticed a post on FB memories the other day - my neighbour had had all her friends round for coffee and cake. They sat on the balcony but were pretty close, it isn't that big! It wouldn't have been so bad maybe - but later the neighbour concerned pooh-poo'd the jab, as I gather she has all jabs for her children.

[piglette in reply to PMRpro]

I have several friends who were anti jab plus my niece. It does seem that all those who turned down the jab never got Covid, while some of those who did have one also got Covid. Very strange.

[PMRpro Ambassador in reply to piglette]

I know of plenty who refused the jab who got Covid - and were desperately ill. Some died ...

[piglette in reply to PMRpro]

I think the ines I knew must have been total tecluses!

[piglette in reply to PMRpro]

Thinking about it there used to be loads in the press about people who had died having refused the jab.

[Pixix]

Wait until you need to ask your husband to put your socks on you, put your bra in the proper place, then pick up the food your tremors have shot across the room, & stick your pain patches on your back each week! None of those are due to me having PMR, I hasten to add, just a nice little collection of other issues! My hair is wild, too. I get it cut pretty short now, less asking for help, & easier to maintain!

[TiaPasha in reply to Pixix]

He did try to put my bra in the right place, but my patience ran out. Bras and aerosol deodorants so over rated.

[PMRpro Ambassador in reply to TiaPasha]

Deos in general!!! I haven't used any since PMR started. Somehow the PMR seemed to cause a massive biochemical change in my body and the BO was awful, especially after a session at the gym, which was hardly strenuous, I had untreated PMR!! So I stopped using any at all, just showered with water, no soap, to let my body microbiome recover. And never went back. And no - I don't smell, BO is due to the action of bad bugs on stale sweat. I have only good bugs and no stale sweat!

Bras - now that's another matter. Not going without ...

[TiaPasha in reply to PMRpro]

How long do you think you had PMR before it was discovered to be the problem. I can find info on things imitating it which is not really helpful. Pretty sure I started getting problems last year on and off, my answer to that was stick a tens machine on and keep going, which is like putting a dirty plaster over an infected cut. I am so wise now. Ha ha.

[PMRpro Ambassador in reply to TiaPasha]

Me? I know, 5 years. I noticed the first stiffness in shoulders and weakness in my legs in the spring of 2004 but the first real PMR symptoms were clear in that autumn. My GP professed he had no clue for 5 years, even when I provided the full gamut of symptoms and the diagnosis that fitted in the summer he insisted on sending me to a rheumy, He provided 6 weeks of pred to cover me for a business trip to the USA. I took the first 15mg at 10.15 and just before 4pm I stood up from the computer and walked downstairs to get tea normally - and carried the mug back up to the computer. I couldn't have done either in the morning - I stomped downstairs one step at a time and crawled back up on hands and knees. The rheumy wanted it to be an inflammatory arthritis but a different GP gave me pred - I was about to move here to Italy and the DMARD required consultant supervision, I didn't have one here. No-one here has ever disputed the PMR, and I have a world expert on PMR as my rheumy. The meeting on Friday that has been mentioned showed a version of PMR that I fit into - it has peripheral arthritis and is one of the refractory versions.

[Pixix in reply to TiaPasha]

Sadly, I’m not built to be able to go without a bra, but I now have ones you don’t have to do up, & are two sizes larger so I can grab them & try to do the job myself!! Aerosols, yes, they’re fun, so are jars which need opening! S x