Been on 60mg pred for GCA for 6 days. While main symptoms have reduced by about 80%, I have been getting positional headaches. So when bending down, getting up, or sneezing or coughing. I did not have this before I started pred. It's fairly mild and goes away when I am upright. My blood pressure is normal.Seeing GP tomorrow but wonder whether others have had these symptoms. The pain is at the front, top and around my forehead. Thank you.
Positional headache: Been on 60mg pred for GCA for... - PMRGCAuk
Positional headache
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I didn’t get that type of headache on Pred for GCA. I can’t remember about before Pred started. You do say that your symptoms aren’t quite controlled so it may be your GCA is causing it. Some people need more than 60mg.
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Like SnazzyD never had that sort of headache -but 6 days is not that long . Obvious if they persist you need to speak to doctor
positional headache was one of my many symptoms before GCA was diagnosed. They ran me through all the tests for a CFS (cerebrospinal fluid leak) instead of low fluid I was bordering on high 🤷🏻♀️. Anyways those headaches went away after I was diagnosed with GCA when a neuro opthamologist did a biopsy after losing partial sight in one eye. Prednisone stopped all my issues just created new ones but saved my sight.
Peggy
I was diagnosed with only PMR, and during my 2.5 years of treating its symptoms I was fortunate enough not to also acquire GCA.
My initial daily Pred dose was 80 mg for 2 days, then reduced to 60 mg for 4 weeks, then decreased to 50 mg and continued tapering. I did not suffer headaches. I was more hyper than is normal as if I ever thought that was even possible.