Positional headache

[kalgoorlie]

Been on 60mg pred for GCA for 6 days. While main symptoms have reduced by about 80%, I have been getting positional headaches. So when bending down, getting up, or sneezing or coughing. I did not have this before I started pred. It's fairly mild and goes away when I am upright. My blood pressure is normal.Seeing GP tomorrow but wonder whether others have had these symptoms. The pain is at the front, top and around my forehead. Thank you.

[SnazzyD]

I didn’t get that type of headache on Pred for GCA. I can’t remember about before Pred started. You do say that your symptoms aren’t quite controlled so it may be your GCA is causing it. Some people need more than 60mg.

[DorsetLady PMRGCAuk volunteer]

Like  SnazzyD never had that sort of headache -but 6 days is not that long . Obvious if they persist you need to speak to doctor

[PMRpro Ambassador in reply to DorsetLady]

??????? Too much rugby??? Perish the thought ...

[DorsetLady PMRGCAuk volunteer in reply to PMRpro]

Flippin' prescriptive text... 🤦‍♀️.. just been over to see himself as well. birthday this week, and looked to be best day to go... Well that my excuses all rolled out.😊

[PMRpro Ambassador in reply to DorsetLady]

🤗

[pmac22]

positional headache was one of my many symptoms before GCA was diagnosed. They ran me through all the tests for a CFS (cerebrospinal fluid leak) instead of low fluid I was bordering on high 🤷🏻‍♀️. Anyways those headaches went away after I was diagnosed with GCA when a neuro opthamologist did a biopsy after losing partial sight in one eye. Prednisone stopped all my issues just created new ones but saved my sight.

Peggy

[Boss302Fan]

I was diagnosed with only PMR, and during my 2.5 years of treating its symptoms I was fortunate enough not to also acquire GCA.

My initial daily Pred dose was 80 mg for 2 days, then reduced to 60 mg for 4 weeks, then decreased to 50 mg and continued tapering. I did not suffer headaches. I was more hyper than is normal as if I ever thought that was even possible.