Not sure if this has already been flagged up, if so, I'll delete it if not, although this was basically looking at Lupus some of the results are germane to us.
Some comments from the email I received.
Many thanks for taking part in the INSPIRE rheumatology survey a while ago.
The team has been busy analysing all the results and we will be publishing lots of papers that aim to represent the patient view.
The second paper was published today. Although for this paper, and the next one, we have focused on lupus, the findings about the patient view being under-valued apply to all the rheumatology diseases.
Our later papers will cover all the diseases and will be trying our best to ensure clinicians and policy makers listen to patients and improve rheumatology care.
New shower cubicle required - one of the doors on old one couldn't be repaired. New cubicle great- very happy with that. So got new power shower as well... slight issue cannot seem to amend the strength of the flow!...okay for shower but takes ages to rinse hair... Guy who fitted it, came back look at it and say "oh see what you mean, will have to get on to manufactures and see what they say" - I just fit it! True there is water coming out, but surely it's not rocket science to check you can alter flow settings the same as you can alter heat settings... or is it me 😏
Also purchased a new bathroom cabinet [self assembly] not an issue except no instructions therein! Contacted online company - do you want a refund or a replacement ? No actually I just want a set of instructions - but seemingly is much too difficult! So I went for refund - the response just dispose of item then, no need to return... what a wasteful approach. So, you know me, searched for manufacture and asked them for instruction - low and behold received this morning by email.
Then on Sunday morning was sorting out some recordings on Sky for upcoming week, and TV suddenly went blank.. with just a red flashing power light... Did all the usual checks - power socket, cables, batteries, other devices input, reboot - zilch.
Spent Monday trying to contact local repairers - no interest. Manufacturers slightly more interested, but only just - did offer contact details - but fruitless as TV too old and parts no longer made. Did get a voucher if I want to buy new one... but only a couple on offer.
Long conversation with all things IT guru [aka son] - he'll have a look through various and see what he thinks I might like - and we'll go shopping in the after Christmas sales - He will install, sort it out and take old one away - so result there in the end.
.. and as he said "I like shopping when I'm spending someone else's money"...didn't say well of course you do - you're a banker!
So looks as if I'm buying myself a new TV for Christmas.
What a pain! Not even the sort of things that you DO all buy at the same time either. So did that mean you get a refund AND a cabinet? I'm waiting for my TV to stop receiving local TV - most of it would be no loss (Italian) but might lose Austrian TV and that means wintersports. It is the change to digital HD and whatever, I'm told it is beyond my TV receiver. But at least it is about 40 euros for a receiver to plug in like the rest of my TV reception! The TV is basically a monitor now,
Nurse daughter has a lovely new TV with sound bar - that's the influence of her partner I suspect ...
Yes I have refund and cabinet - just need to get it assembled... It was reduced so not very expensive but I begrudge throwing something away without reason...
But that seems to be the mindset nowadays.... was talking to my neighbour about getting TV repaired - and he said - "oh you won't get anyone to repair it, they don't bother nowadays, just say buy a new one!"
And why the EU is changing rules so things CAN be repaired again. They will repair a lot of stuff here - why I go to the electricals shop I do. They may be a bit more expensive but it is worth it when something goes wrong - and they install things without whinging you haven't done this that or the other.
TV was 12years old, and I had been thinking about updating it, so not too upset about that -should have done it on Black Friday (useful comment from son) -but after Christmas sales will do!
You could set up your own little business if you're short of summat to do!
Oh right …. I know I’m a bionic woman, a Viking Goddess and an agony aunt but even so, one has to draw the line somewhere you know… 🤨… but thanks for suggestion when I get bored ..😂🤣
😅😂🤣Oh, I laughed!!! Did it come from Wayfair by chance? Love it, ivy would do great in that moisture. Nice deep drawers. ( Bathroom is large enough---serving one person at a time.)💞
Wayfair is well-known for ....' keep it or toss it.' Had a friend who twice received a table with only three legs...the third was fine; one beautiful table and a creative bookshelf were her results ~!😄❣️
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For SheffieldJane - My inspiration! 
Inspired by Mark to update on progress:)
Matteson study - my experience
