If an extra 5mg is not quite enough: is it OK to go... - PMRGCAuk

PMRGCAuk

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If an extra 5mg is not quite enough

Sophiestree profile image
11 Replies

is it OK to go a tad higher?

Think I left it all too late thinking it was something else. Increased from 7mg to 12mg since last Friday but still got a fair few symptoms.

My happy place was always 8mg. Been reducing by half a mg over 6 weeks and was ignoring certain signs thinking it might just be the reduction and getting used to it.

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Sophiestree profile image
Sophiestree
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11 Replies
SheffieldJane profile image
SheffieldJane

How disappointing. You could try 14 mgs and then maybe taper again, or go down in a couple of stages, rather than straight down. Perhaps to 8 mgs if that is your happy place.

Sophiestree profile image
Sophiestree in reply toSheffieldJane

8mg is definitely my happy place!!!

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

You might need a bit longer, it's okay to stay at higher dose for 14 days before it impacts on drop back down.. so maybe see what happen over the weekend - and then if no better try another mg or two... you'll still be within the 2 weeks window.

Sophiestree profile image
Sophiestree in reply toDorsetLady

Yes, I thought after a week (tomorrow) that it might have kicked in by now. Thanks

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toSophiestree

..and if it does, then back to 8mg… no lower… 😊 for time being anyway.

Sophiestree profile image
Sophiestree in reply toDorsetLady

👍

PMRpro profile image
PMRproAmbassador

Obviously - try a couple of days at a higher dose and if it doesn't work you can go back, It sounds as if it has improved, just not entirely?

Sophiestree profile image
Sophiestree in reply toPMRpro

It has a bit but not the head and neck issue, but certainly the shoulder blades are improved. I think I should have acted earlier as it was over 3 weeks before the penny dropped fully as my hip can take over a lot of things for me.

PMRpro profile image
PMRproAmbassador in reply toSophiestree

Only one way to find out!

MiniSpec profile image
MiniSpec

I am normally on 3mgs but recently when I tried to reduce I had a flare. I had to go up to 12mgs per day for 4 days to overcome it, but then dropped back to 3mgs again once everything was back to normal, and so far so good!

So don't be afraid to go higher than the 12mgs you've been taking, if that's what's needed to knock the inflammation down.

Sophiestree profile image
Sophiestree in reply toMiniSpec

Oh that's interesting. I went up to 12mg but have just done day 3 of 15mg and plan to go back down.

I am distracted by my face now feeling slightly numb and tingling going up my head!

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