It's almost 4 weeks since I dropped to 7.5 x 7 from 7.5 x 4.
I posted a few weeks back about aches and pains and can't find the post.
I am more and more thinking my pains are PMR. Yesterday and today I am not keeping on top of it and over last 10 days have taken the last of my codeine stash x once per day. They ran out on Friday and I emailed my Dr for another box to tide me over til my osteo appt on Thursday.
Planning on increasing my steroid dose but wondering about how much and how often? A week at 8mg per day maybe and then head back slowly. My CRP was raised by 2 points when tested last week.
Bloody annoying
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IdasMum
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Sorry. 7.5 mgs per day x 7 days. previously was 7.5mg x 4 days and 3 days at 8mg.
I haven't expressed this well
I presume you mean you are tapering down and now on old dose 1 day, new dose 4 or is it the opposite? If you are flaring then yes, you should probably stop the taper and go to a higher daily dose. Do you take codeine daily usually because any aches and pains of withdrawal can last at least a week. If you think now it is pmr then if Dr allows it raise the dose. I flared at 6mg dud 3 to 5 days at 10mg then went to 7mg where I still am. I hope this is clear, clarity depending if I was right about the taper! 🌻
Not sure I can express it any other way. I have been at 7.5 per day for almost 4 weeks.
Before that I was on 7.5 per every other day and decided to jump to every day as i was feeling well. I don't feel unwell now. No fatigue and energy levels pretty good.
Just achy and pain. Making me cry now and that's unusual....and the pain is not excruciating just unrelenting and i am feeling sorry for myself.
I don't normally take codeine but have been for last week/10 days as I had some old stock.
Was taking one tablet (it's Dafalgan+Codeine) before bed.
I should be able to raise my dose as I am the one controlling it. I also have a stash of 1mg steroids so can keep at 8mg for a while. Might take 10mg tomorrow and then 8mg for a while.
I, too, am finding the slow taper from 7.5 to 7.0 a bit problematic. At 7.5 daily I felt well with very little fatigue. Now on 5 days 7.0 and 2 days 7.5 per week, some aches and pains are returning, and I'm not sleeping well. I don't think the rotten November weather we are having in Somerset is helping - getting any sort of daily walk in the fresh air is a wet affair! I have also (as of 2 weeks ago) had Metformin added to my mix of meds - I had managed my type 2 diabetes by diet for 5 years, but my blood sugars have suddenly rocketed, so maybe my body is having to get used to that change as well. My husband is telling me to go back to 7.5 every day, or even 8, until I have adjusted to the Metformin.
Thanks Pops and PMRpro. I hadn't heard that Metformin could actually be helpful when combined with Pred. I'll go back to 7.5 daily for a couple of weeks at least.
My GP wants another HbA1c test in 3 months - they won't do it more often than that. After several years of keeping my level to under 50, mainly through diet and without Metformin or other meds, it has suddenly jumped to 72 during the 7 months I have been on Pred for PMR. Obviously, I have informed my optician although, so far, my annual diabetic eye-screening has shown no abnormalities. MY BMI is only 24 so not overweight.
There's not much point doing an hba1c any more often I don't think. I think of my daily tests as photographs and the hba1c as a video or film of the ups and downs that end in a score. Not very technical!
Hba1c is a reflection of the BS levels over the previous 3 months - doing it more often might show it tracking lower if you are being successful at reducing the BS with diet but it is a rolling value so GPs won't do it often. Silly really but hey ho - they hold the purse strings ...
Sounds horrible Cross-stitcher and if I had fatigue in the mix I'd be more inclined to think I'd dropped too low. I found adding Metformin to the mix helpful. It seemed to make a big difference to my CRP level. Seems like you need to up your mg a little for a while. Hope you begin to feel better.
Meanwhile I have woken up with less pain and am more aware that the pain is from my left shoulder, the one I landed heavily on (I can only land heavily at my size!) a few weeks back. I think I had wrenched it a bit the night before in bed and therefore yesterday's pain was more referred pain from there. I haven't upped my mg's of Pred and am guarding my shoulder a bit today (not ideal as I don't want Frozen shoulder).
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If an extra 5mg is not quite enough
Enough to make your hair curl!
Adrenal glands not producing enough cortisone
What happens when trying is not good enough?
I really have had enough!
