Hi there, my husband who is 51 was diagnosed with PMR on 1 October. We have quite a few questions that if anyone could help, we'd be really appreciative.
The background is that mid June he thought he had stiff groins and slowly more and more joints became stiff and very painful until mid July his shoulders, hips, back, hamstrings and quads all became incredibly painful. That prompted tests and then PMR was diagnosed. On 10 Sept he was given a steroid injection by his Rheumy and prescribed 20mg Pred for a week, After seeing his Rheumy 1 week later (17 Oct) and saying he felt about 70% better than the week before, he was told to reduce Pred to 15mg for 1 week, then 10mg the week after. He couldn't cope without Ibuprofen whilst reducing (we hadn't found this forum at that point and so he just did what he'd been told). On seeing the Rheumy again on 1st October when diagnosis was confirmed, he was told to increase to 17.5mg but actually went to 20mg to try to get back to the point where he felt 70% better and coping without Ibuprofen. This is where he's been at since 1st Oct - 20 mg Pred and no Ibuprofen. From reading previous posts he won't take Ibuprofen again whilst being on Pred.
Since about 28th September he's been noticing his wrists and hands have started to feel stiff, painful and very, very weak, especially in a morning. He actually couldn't press the nozzle on his shaving foam last week - it's that extreme of weakness. The weakness does subside as the day goes on (he takes his Pred in a morning), but this is a new symptom that's occurred. He's due to see his Rheumy on 29 October.
Is this wrist & hand issue common?
He's sure he read somewhere he had to take his Pred in a morning - do most of you take yours then too?
He's still quite stiff first thing and does experience some pain in his shoulders and hip flexors, he finds it hard to 'get going' but certainly progresses during the day.
Pre June he was at the gym 4 to 5 times a week, working mainly on cardio and at about 85% and mainly running on a treadmill for about an hour. He now is walking about 20 mins a day, twice a day, but isn't doing any more exercise. I can see people are recommending swimming and spinning (he did try a spin class but it was quite painful in his upper body).
I can see weight training is recommended to counteract Osteoporosis - he's not sure whether he should give this a go yet or not.
Because he's still experiencing some discomfort, does that mean his PMR is not under control with the level of Pred he's taking, or does the fact that he gets better during the day suggest he is ready to start reducing to 17.5mg?
We have just purchased Kate Gilbert's book and looking to gain more knowledge.
Thanks in advance