Suspected GC A, pain worse

[arvine]

I have posted about these new symptonns, had ultrasound for temporal arteritis done on DEC 19 as ordered by rheumy, he increased my pred on DEC 16 from 4 to 25 mgs that day after contacting him about tegnderness, bruised feeling scalp and right portion of fore head, , blood work showed raised markers, seems pain getting worse, especially in mornings, right eye feelinng little bruised this morning, rheuym wont be back until JJan 2, wondering if I should be increasing little mmore, getting ittle worried, as know if it is GCA, does affect sight, he was suppose to call this past tuesday, and just yesterday, no call came in fromm him , I am upset , worried, and disappoinnted, he has not called as promised, please, let me know your thoughts, thank you

[Blearyeyed]

If it is getting worse I'd try to call to speak to any Rheumatologist over the weekend to get them to look up your results and give you advice.I know , it's the weekend , and New Year , but calling main reception area in your hospital from 8am and explaining that you are getting worse and have suspected GCA , need your scan results , and a Rheumy to advise you on dose as your eyesight could be lost without treatment then they should contact whichever Rheumy is on call tomorrow to help you.

If you are getting no response or do not get passed to a Rheumy I would say you may be better going in to hospital out of hours or A and E to get the right specialists advice and help .

If it is GCA we couldn't say the best dose here as it could be high , and an inappropriate dose level for us to suggest. If it isn't GCA , but something else , you could not be sure whether increasing the steroid more without knowing the diagnosis could cause more harm than good.

Hope you get some help very soon