Fuzzy brains: I am down to 3 mg of pred from 50mg... - PMRGCAuk

PMRGCAuk

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Fuzzy brains

allotment-lover profile image
5 Replies

I am down to 3 mg of pred from 50mg, which has taken 2 years 3 months. Is it possible that the Pred is causing my difficulty in keeping a train of thought, and general brain fog at times? I do notice quite a difference from how I used to be. I would have thought the dose is quite low to still be affecting me that way. I am 70 so could it be that? Any help gratefull received.

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allotment-lover profile image
allotment-lover
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5 Replies
polkadotcom profile image
polkadotcom

I'm 70 too, and find my attention span and short term memory very different now. Multitasking was one of my best skills - but no more!

I do think physical age has a lot to do with it as in my head I am still 29 and expecting to respond as I did then! Since I realised that I have deliberately slowed down and am finding things easier if I concentrate on just one thing at a time. I do get more done now in that way than trying to be a butterfly fluttering from job to job.

I hope this helps!

PMRpro profile image
PMRproAmbassador

Both the illness and the treatment can cause brain fog! For some people even low doses have an effect while others recover much sooner.

GCA is a serious illness, pred is a powerful medication - you have been through a lot and it is over 2 years on. I went through a long period where I could NOT do two things at once, not even coordinate cooking a meal and getting the chicken and the veggies ready at the same time if someone even spoke to me. It has improved mercifully!!!! Fewer burnt pans now...

11caroline29 profile image
11caroline29 in reply to PMRpro

So glad to hear that someone else struggles with 2 things at once. Before Pred & pmr & gca I was the most organised person and multi tasking was no problem. Now I can only manage to think or do one thing at a time. At age 50 this is the most upsetting symptom of my journey so far. Unless that improves over time I question will I ever be able to return to work? I can only hope!

PMRpro profile image
PMRproAmbassador in reply to 11caroline29

It has for me - I had to continue working as a freelance translator in the earlier days and if someone walked into the room it disturbed me, never mind talk to me, it had never been a problem before.

Now I can have 3 forums open on the computer at the same time, have "chats" on Facebook with both daughters and a friend at once as well as reading other posts in between with the lag in the conversation, my memory is back to normal - some of the others comment on me remembering something about their PMR journey. Physically I'm still not where I was before PMR, but then, I'm 10 years older.

It does get better.

allotment-lover profile image
allotment-lover

Thanks for those replies, I will not give up hope. My bridge playing has really suffered apart from other things!

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