Does everyone feel like lead on waking in morning - PMRGCAuk

PMRGCAuk

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Does everyone feel like lead on waking in morning

arvine profile image
11 Replies

this feeling has been going on for few mos now, maybe aging, don,t know, even while on 5 mg pred, had MRI done, and new rheumy, says have osteo, through back and joints, advised to taper after being on pred for over 6 years, lead like feeling does gradually go after moving in am, but does take a while, and of course, muscles, and lower back always hurting, sometimes better than others, does= osteoarthritis have this affect on body when arising after a nights, sleep?

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arvine profile image
arvine
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11 Replies
SheffieldJane profile image
SheffieldJane

It sounds like Osteoarthritis arvine. If it was PMR, taking your Pred at around 2am might be worth it.

arvine profile image
arvine in reply to SheffieldJane

K thank you

Seacat30 profile image
Seacat30

My older sister tells me that it does. She does exercises with her legs in bed and takes a dose of paracetamol. She feels better after she has been up for a while.

Yep, I feel stiff on getting out of bed and also notice walking down the stair my knees hurt...something that's only come on over the past few weeks. Because some of us are in our 70's and 80's we forget we're getting old, so all these aches and pains will present themselves despite PMR.

LCfan profile image
LCfan

I've noticed this too lately. Had OA for years in my wrists, hands and feet but now seems to be in my back and knees. Some exercise in bed helps before I get up, not very early these days!

SID3 profile image
SID3

I think there are two dimensions to this. One is that of pain and stiffness - I have some residual soreness on waking (am on 5mg) but nothing like the ‘original’ pains. The other is a sense of fatigue and fug - like being in a lead overcoat. That tends to pass over an hour or two and may be related either to the PMR or to adrenal problems. At 10am I don’t feel like my weekly golf game but by 12 I am playing and enjoying it. Of course there is also the psychological element….

Whitner profile image
Whitner in reply to SID3

I find that after spending hours on my feet that I experience cramps in my feet and legs once I’m seated and the feelings you describe of leaden and stiff legs upon waking. I also have a thing that’s hard to describe… like fluttering in my legs. All pretty annoying but I can still play golf or take a walk later in the morning and feel fine doing that. I’ve gotten down to 1.5 mg of prednisone.

PMRpro profile image
PMRproAmbassador in reply to Whitner

Again - might be worth trying magnesium supplements. Magnesium deficiency is far more common than English-speaking doctors admit - all over the centre of Europe the first question asked if you have cramps of any sort is "have you tried magnesium" and good supplements are available in every supermarket! Of course, the one I need (I also use it for atrial fibrillation) is only at the pharmacy ...

Whitner profile image
Whitner in reply to PMRpro

thank you PMRpro, I’ll do that daily instead of after the fact 😊

k-mac profile image
k-mac in reply to PMRpro

Hi Which Magnesium would you recommend please ? I experience a fair bit of cramp and Afib. My gp said anecdotally he had heard that some patients experience Afib improvement with Mg.but no details about what form and there seems to be a lot out there . Thank you

PMRpro profile image
PMRproAmbassador in reply to k-mac

You have to try to find one that helps for you. I use what the hospital here uses - but unfortunately it is an Italian and French version which I haven't been able to find anywhere else: magnesium pidolate!

pubmed.ncbi.nlm.nih.gov/224....

This study is one from Germany - maybe their choice is available in the UK?

Magnesium sulphate and magnesium taurate are mentioned in other studies.

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