Recently someone complained about being charged £10 for an OCT scan at a well known opticians. It was certainly worth the money for me. The optometrist noticed changes from my previous annual scan, some swelling of the nerves and a slight bleed. She advised me to go to A&E to have it checked out. After some tests including a CT scan with dye, they found I have central venous thrombosis. I am in hospital being monitored further and having blood thinning injections. Apart from an unremarkable sinus type headache around my left eye, I was unaware there was anything wrong. I could have had a stroke, lost my sight or worse! I am very grateful to the optometrist who was very knowledgeable and diligent.
The causes are uncertain, it can be a history of clotting or use of the contraceptive pill. When I looked it up, there was also some mention of vasculitis so I was wondering if it could be linked to PMR or to taking prednisilone?
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Rache
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wow Rache thank goodness for that. I hope you continue to do well. I wonder if it is Giant Cell Arteritis linked? This is why I go every 6 months. It costs me £60.00
I go yearly and have the full scan that cost me £70....weird how they all charge different prices. Not sure the £10 one covers everything though. But for that to be picked up was brilliant.
I have asked that but the consensus is that it’s not related to GCA. Thanks for your good wishes Jane. I have an annual free check, just paid for the OCT scan. May go twice a year from now on, that’s if I survive this!
My hubbys diabetes was picked up after an eye check up. So important to get check regualarly. And now he has Macular Degeneration too. However, no eye in jections for months and months, so seems all is stable at the moment. One good thing going for the poor man !! Can't wait for the 27th when he goes in for his first hip op. Looking forward to a break to recharge before all systems go again once he's home.
Glad your husband’s problems have stabilised. Not long now until the 27th! I can understand how much you’d appreciate the break. Sending you all good wishes 🌷
Thank you so much. Feeling a little down in the dumps today. Get that from time to time, physically and mentally. Been taking 6mg for a month now having flared on 5mg. So tomorrow I'll start 5.5mg again and try again in a months time at 5mg. Was hoping to be on 4mg this month when I see my rheumy on 19th, sadly, not the case.
Don’t be too hard on yourself. You have a lot on your plate. No wonder you have low periods. I am on 5mg although I had got down to 3mg this time last year. A bit disappointing but I’m not trying to reduce while I’m in hospital.
What a good thing you went for the scan! May have been me recommending but whoever it was we know for sure from your experience that it's money well spent. Best wishes for the future 💐.
wow! Did you go just for a regular checkup? Or because you thought something wasn't right? You must be relieved either way that they have found all this in time. So scary.
I hope everything goes really well for you, I go every six months and never know what checks I'm having so will ask next time if it's an OCT. I just pay and say thanks see you in 6 months.
it was a regular check up although I made the appointment a bit earlier as I’d had a particularly large long floater. Not every optician has an OCT scanner which looks at the back of the eye. Maybe worth asking.
amazing... floaters are my biggest issue, bang in the centre, my optician says there is nothing I can do. There is some procedure but he didn’t advise it. Sometimes life is just one big blur. I will certainly ask him when i go next time.
I've had one in the middle of my left field of vision for about 20 years, since about the start of PMR. I noticed early on that it improved with higher doses of pred but returned to looking like a greasy finger print on my specs at lower doses. Gone altogether I realise after 3 years of 15+mg pred!
Funny, I thought it was the pred that brought them on. They are a pain as bang in the centre. At first the optician said they tend to go after six months which I thought was tolerable, 18 months later..... urgh
add those to the cataracts apparently I now have it's a nightmare.
Yes I had mine way before going on prednisone but I don't think mine have gone away, I've just gotten used to them. The only time they really bother me is when I see a little dark spot in my peripheral vision and think I've got a gnat flying around my head
oh my eye check is due and i intend getting that scan too, i got it the last time. Best of luck with it all, let us know how things go. Worrying for you til its sorted.
Well done that optometrist! It was my optometrist that sent me off to a specialist clinic and saved my sight. It wasnt the same as yours but all the same if I hadnt been seen I could have lost sight in my right eye! I think £10 is very little to pay for that!
Glad you got checked out and that your ok, I have told my doctor that I had a smalll bleed behind my right eye when I got my eyes checked last year with the opticians but was told by them that it would go away on its own accord. I get headaches like my head is going to explode and get blurred vision, when I take an aspirin it helps me sometimes as it’s a blood thinner but I all I got told was that I could be toxins that my liver can’t deal with so they go to the brain.
Did you get any type of headaches or blurred vision if you don’t mind me asking 😊
No blurred vision and just a slight sinus type headache over my left eye. It’s the type of headache I’ve had for years on and off so it may not be connected at all
So sorry to hear about your eye problems but thankfully you are being looked after. At my last eye check up I was offered an OCT scan. It was described to me as an MRI scan on your eyes. I think it was £10 well spent. Our sight is so precious. Hope all goes well for you, 🌸Tiggy70.
Do hope everything is progressing well and under control. Top marks for the OCT screening. By coincidence on the day you posted your experience I received a reminder from my optician about my annual checkup, and included was a leaflet offering me OCT. I'd never heard of it. Will definitely opt to have this done! Thank you for telling us about it!
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PET scan results and thoughts please :-)
A lesson possibly to be learned!
Blurry eyes - caused by Pred? And resolving after Pred stops?
dexa scan and AA
