Hunger and Tears: now that I am tapering again... - PMRGCAuk

PMRGCAuk

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Hunger and Tears

Singr profile image
32 Replies

now that I am tapering again after 2 and a half years I’m revisiting old experiences. Physical and emotional. The aches and pains along with fatigue are daily trials I’ve learned to expect. I’ve managed against the odds to lose 4 stones in weight and so delighted about that. Since I am now alternating between 6 and 7 mg my old friends are back. Hunger and Tears. I’ve had uncontrollable, ravenous feeding frenzies. When I say hide the biscuits I’m not kidding. Yesterday I cried the whole day long. Big sobbing cries. Even though I don’t feel sad. I remember this from last taper. I’ve been told I am particularly sensitive to the withdrawal. Now I know for definite that it is a chemical reaction. I wish you all well in your tapering journeys. Hoping we all manage to get off this stuff somehow.

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Singr profile image
Singr
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32 Replies
PMRpro profile image
PMRproAmbassador

All the best with this stage ...

piglette profile image
piglette

I use an app MyNetDiary which has a free version. It allows you to plan your meals and calculates nutrition and health generally. It does mean that because I have planned what I am going to buy/eat I do not have any other food available! It is a great way of really reducing any food being thrown away, although I still find that I have to throw away soft cucumber and have not discovered a way of saving it yet!

Singr profile image
Singr in reply topiglette

I'm looking after my nieces house and cat just now and she has (used to have) lots of snacks in the cupboard.

piglette profile image
piglette in reply toSingr

the cat or your niece?!

PMRpro profile image
PMRproAmbassador in reply topiglette

Any soft veggies, including cucumber, can be revived by cutting the end off and standing the cut end in water so it absorbs water by osmosis. Doesn't work if the cucumber is soft because it is going off of course.

And if you catch them in time - pickle? Keeps them for a few more days in the fridge.

"Pickle them

To make a quick pickled cucumber simply sprinkle sliced cucumber with salt; leave for 20 mins. Pat fry and transfer to a sterilised jar with equal quantities caster sugar and white wine vinegar. Use straight away, or leave longer for the flavours to develop. You can even jazz it up by adding extra ingredients like dill or fennel."

piglette profile image
piglette in reply toPMRpro

I do do pickled cucumber quite often, but I buy a cucumber, pickle say half then leave the rest in the fridge to have unpickled, then I find it has gone all soft. I have pickled semi soft cucumber and got away with it.

PMRpro profile image
PMRproAmbassador in reply topiglette

They do seem to keep very well here - maybe they get here quicker!

piglette profile image
piglette in reply toPMRpro

perhaps I leave them in the fridge too long!!

PMRpro profile image
PMRproAmbassador in reply topiglette

I try to keep mine very visible!!!

Blackcat1M profile image
Blackcat1M in reply topiglette

any soft veg,and celery when I have any left wrapp up in three sheets of kitchen paper and put in salad tray I find it keeps longer.👍

Bridge31 profile image
Bridge31 in reply topiglette

According to the College of Agricultural and Environmental Sciences - Cucumbers should be stored at room temperature – not in the fridge. Apparently when cucumbers are stored for over 3 days at temperatures below 10 Celsius, they'll get cold injury: wateriness, pitting, and faster decay.

However in this recent hot weather the best way to keep them in the fridge is to wrap them in a paper towel and then in an airtight container away from any other vegetables.

PMRpro profile image
PMRproAmbassador in reply toBridge31

That's fine when you have a shop handy but most cucumbers would be walking out the door left at room temp for more than a day or so!

herdysheep profile image
herdysheep in reply topiglette

I never keep cucumber in the fridge. Goes mushy too quickly. Have been growing 'snack' cucumbers this year - about half normal size. Delicious. When i make beetroot hummus, I use cucumber instead of bread sticks. Often eat cucumber as a snack instead of crisps and the like.

PMRpro profile image
PMRproAmbassador in reply toherdysheep

I never use bread sticks for hummus - cucumber or carrots mainly. But I'm often to be seen with 6 inches of cucumber eating it like an icecream cone!

herdysheep profile image
herdysheep in reply toPMRpro

ditto! Cumbers sometimes don't make it from greenhouse to kitchen!

PMRpro profile image
PMRproAmbassador in reply toherdysheep

Bet yours are better than mine!!!!

herdysheep profile image
herdysheep in reply toPMRpro

possibly but yours will be better than shop bought here

PMRpro profile image
PMRproAmbassador in reply toherdysheep

Not always - some of them come from Holland!!!! I'm not too keen on the field ones, bit bitter ...

AshPen9 profile image
AshPen9 in reply toPMRpro

carrots and red peppers for us.

Blackcat1M profile image
Blackcat1M in reply toPMRpro

oh I remember doing that near Christmas for my mum happy days. Hope you are keeping well !

piglette profile image
piglette in reply toPMRpro

It seems from our minimum research that once cucumbers have gone mushy there is nothing you can do with them, while other things you can usually throw into soups or whatever.

PMRpro profile image
PMRproAmbassador in reply topiglette

You can make soup surely? Of course you can!

foodandwine.com/recipes/col...

It has to be liquidised. And it freezes ...

piglette profile image
piglette in reply toPMRpro

they would be hard to deseed and chop though. Just liquidise them perhaps?

powerwalk profile image
powerwalk

congrats on the weight loss!! Best of luck with the taper. Its a struggle thats for sure!!!!

Swdai profile image
Swdai

well done on your weight loss - you have done amazing . Good luck with the tapering .

Zappata profile image
Zappata

I have the same problem trying to reduce. I have been at 6 nearly a month but have had to go back to 7 and am too getting over emotional nd angry again partly due to feeling the aches again. I think the hot weather kept some of the aches at bay possibly. I am dreading the winter tbh but trying not to up my dose too much so will alternate this week and hopefully get back down again

PMRpro profile image
PMRproAmbassador in reply toZappata

6 is obviously not quite enough - have you tried cutting a 1mg plain pred tablet and do 6.5mg every day? It is better than yoyoing - which makes it harder in the long run.

Zappata profile image
Zappata in reply toPMRpro

I will try that. When you have been used to much higher doses you tend to think a tablet or two 2 extra is fine but the reducing is so hard!

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toZappata

it’s easy at higher doses, plenty of surplus Pred in body, but as you get lower 0.5mg really does make a difference.

Took me as long to get from 10mg to zero as it did to get from 80mg to 10mg.. too many doctors don’t get that!

Zappata profile image
Zappata in reply toDorsetLady

thanks for your advice. Honestly without this forum I would be pulling my hair out - what's left of it😂

Singr profile image
Singr in reply toZappata

I'm with you there. I'm glad I'm away from my family right now. I don't think I could cope with the chaos feeling like this.

ImC_ profile image
ImC_

hi Singr,

So sorry you are suffering in this way and hope it is a phase you pull through soon. Congrats on losing so much weight, and that must be helping compared to if it was otherwise.

Good that you recognise it is “just” a chemical reaction, as you describe it. It is still real though and I hope you find some way that helps you deal with it.

Best wishes.

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