Right hip pain

[Amkoffee]

 So as I've written here before what I thought was perhaps a stress fracture in my right hip I have since learned through an MRI that it is not. I have suffered for 15 years with lower back pain and apparently this right hip pain is a result of the spinal stenosis they said I've have. This is bad news because there is no treatment. At least with a stress fracture it would heal and eventually stop hurting. This will never stop hurting and has made it nearly impossible for me to walk. I am quite distraught over this and am not sure what my future looks like. I still have PMR and am treating it with prednisone. I am down to 7.5mg and doing fine with it.

[yogabonnie]

I am so sorry to hear this. I wonder if someone here has experience with it..and can help!! hope so!!! Glad the taper is going well and not something ELSE to worry about!!

[Seacat30 in reply to yogabonnie]

Hidden might have something to add?

[PMRpro Ambassador]

So sorry to hear that - can they offer anything to mitigate the pain? Hugs

[SheffieldJane]

Are pain clinics still an option? So sorry to hear about this - don’t give up.

[Amkoffee in reply to SheffieldJane]

This info was told to me by my pain management doctor. I do have a pain pump that delivers morphine directly to my spine. She upped my dose but only by 5% and it simply isn't touching this new pain.

[SheffieldJane]

Then you must return until you have relief. 🍀

[krillemy]

What about Lumbar decompression surgery is used to treat: spinal stenosis?

[Amkoffee in reply to krillemy]

The surgeon won't touch me because I also have severe osteoporosis. I've had 7 fractures in my back already. A chiropractor also won't touch me.

[krillemy in reply to Amkoffee]

I am so sorry - I hope you find a way

[Bradfordjoiner in reply to Amkoffee]

hi sorry to hear this I too have something going on with my hip and now it’s started to go into my right ribs too I’ve not been diagnosed with anything apart from gall stones but I think this was a finding on a routine examination the pain is horrible and definitely feels like nerve pain as it radiates throughout my right side ? Have you tried low thc high cbd I use a vape some nights and it numbs the pain ? I’m from uk so our thc has to be under 00.2 so it’s definitely the cbd that’s helping without the head high …..

[Amkoffee in reply to Bradfordjoiner]

I've tried everything including THC and CBD. I live in the US but Marijuana is not legal in my state. But I still tried it and still no help.

[Bradfordjoiner in reply to Amkoffee]

Terrible news …. Keep your head up something will turn up for you …..

[Artsister]

When I had PMR my hip started hurting. My rheumatologist ignored me and then I found out I had avascular neucrosis — because prednisone cut off the blood supply to the hip, resulting in my hip bone deteriorating. I had to have a hip replacement. Sad.

[Amkoffee in reply to Artsister]

The Dr was afraid of that too. But according to the MRI my bones in my hips look good. Which is kind of surprising given the severity of my osteoporosis.

[Amkoffee]

Hmmm. I asked my doctor if walking would damage anything and she said no. And now I learn that your doctor says yes. This is so frustrating.

[Amkoffee]

Surgery is not an option for me because I have severe osteoporosis. The surgeon said that anything attached to the spine (the vertebrae) would make my bones crumble even more. I've had 6 fractured vertebrae and a fractured sacrum in the last few years.

[Amkoffee]

I had to chuckle because in the second paragraph, last line it says you have to "gin" up the courage for surgery. I would guess gin would help. 😁😁😁

[tangocharlie]

Can you get a second opinion? Also see a physiotherapist, they often know more about limb mechanics than the doctors. Don't give up yet

[Amkoffee]

Those dexa scans are not always very accurate. Or maybe it's the person reading it. I was told that I had osteopenia and then just 2 months later I broke 2 vertebrae by bending over. I had kyphoplasty on those 2 and than broke 4 more. I also fractured my sacrum and a rib at different times. Obviously, the scan was wrong.

[Sharitone]

So sorry for you. Is there any chance the pain might at least fluctuate?

[Amkoffee in reply to Sharitone]

It is fluctuating now. It goes from really bad to unbearable! 😟 Actually it only hurts when I put weight on it. Today I rented a wheelchair to use in my home just for one week to see how that goes.

[Nightingales]

so sorry you are suffering with this awful pain. Has anyone ever discussed Radiofreqency Ablation (RFA) with you? I have spinal stenosis and debilitating hip pain. I have had RFA on my Sacriliac joints with good results. It lasted about 18 months and now I am on the interminable waiting list to get it done again. I think they can do it on other areas of the spine. I do hope you can get some relief.

[Amkoffee in reply to Nightingales]

I had that done on my neck but unfortunately it just doing work.

[Nightingales in reply to Amkoffee]

my first didn’t work but the pain dr went in and repeated it and the second time was a charm.