hurting feet: Hi I have read that PMR does not... - PMRGCAuk

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hurting feet

Purplecheeks profile image
23 Replies

Hi

I have read that PMR does not affect your feet. But aching/painful soles of both my feet are driving me mad, alto my big toe.not when I'm walking but when I rest. know it's not a planta problem I have had that before and this is nothing like that or am I just going mad ,or has anyone else had this, or foot problems.Thank you.

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Purplecheeks profile image
Purplecheeks
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23 Replies
SheffieldJane profile image
SheffieldJane

It may be a fungal infection like Athletes Foot. I have only discovered recently, from a Podiatrist, that it can manifest in this way. She tested my feet and got a positive for Athletes Foot, yet there was no typical issues between my toes, just burning soles with some aching. Lamisil Once cleared it up. She was worth her weight in gold on many levels.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

PMR can affect feet, see related posts....or look at search facility..

PMRpro profile image
PMRproAmbassador

I had foot problems in early PMR, felt as if the soles of my feet had been sandpapered plus I was wearing shoes a size or two too small with insoles that were a mix of pebbles, sharp gravel and broken glass ... I've heard similar descriptions from others.

MrsNails profile image
MrsNails

My left foot plays up - my Rheumatologist sent me for a Scan but the guy was the rudest, most unkind ‘professional’ l’ve ever come across! He was so rude that l was on the edge of tears! His worst question was he asked in an accusing voice was why l’d had Chemo? Like it was an option!

He concluded nothing was wrong with my foot - yet a Private Consultation & Scan proved l had a Morton’s Neuroma & was treated relativity successfully - its actually playing up again so another visit may be in order!…..

PMRpro profile image
PMRproAmbassador in reply to MrsNails

As if anyone would choose to have chemo without good reason!!!! I do trust you complained.

Suffererc profile image
Suffererc in reply to MrsNails

I have been diagnosed with MN. Cortisone injection hasn’t worked. Reading your thread I have hope . Seeing consultant again after 2nd ULTRASOUND 😊

MrsNails profile image
MrsNails in reply to Suffererc

I had laser treatment on mine & it did improve - not 100% but better than it was.

Highlandtiger profile image
Highlandtiger in reply to Suffererc

I had two MNs unusually on the same foot at the same time. It was excruciating. They only discovered there were two on the ultrasound scan. I had a few steroid injections but eventually ended up having to have surgery after resisting for many years. It has been very successful but was, I think, one of the 'last straw' stressors which triggered my PMR…

Bedwell profile image
Bedwell

I have hot throbbing feet and knees.. particularly when lying down. Saw a suggestion online of lying down with your legs up against the wall! Have tried a few times… not sure about any help!

Triumph650 profile image
Triumph650

Everyone is different my pain goes straight to my feet when I get a flare up

Bertiebeagle profile image
Bertiebeagle

I had what I initially thought was plantar fasciitis. When I saw the rheumatologist to try to find a way to reduce my prednisolone dosage she diagnosed psoriatic arthritis as well as the PMR. She prescribed methotrexate and my feet have improved incredibly, it might be coincidental but maybe worth checking out.

Dobermanlover profile image
Dobermanlover

Yes I've had dreadful trouble with my feet. Pebbles, broken glass sounds just what I feel. Only thing that helps is to buy thick memory foam insoles to pad out shoes. I have had to discard a few pairs in the process. Make sure soles of feet are free from calluses and hard skin and treat with a good foot cream. All helps but still can't walk comfortably in bare feet.

PMRpro profile image
PMRproAmbassador in reply to Dobermanlover

Mine improved steadily once I was on pred - thank goodness. But you are absolutely right about foot care: I had a corn on the ball of one foot that a chiropodist worked on but didn't "dig out" entirely so it returned, A young friend here did all that training as part of her physio training in Germany to use in her parents hotel as a fledgling "wellness" service and she did a foot-care session fr me and worked on it very diligently. Never returned - because my walking was so much improved!

DONNA1949 profile image
DONNA1949

I have been dealing with plantar fasciitis for 7 - 8 months now, have had everything done possible and many expensive shoes suggested by podiatrist and PT. No relief, so headed to another doctor for possible surgery to release the tendon. I have been off prednisone since June but was on high dose at beginning of this diagnosis. Don’t know hat has caused this problem but ready for it to go!

PMRpro profile image
PMRproAmbassador in reply to DONNA1949

I don't know if it is what has made the difference - but my tendon problems are improving slowly since I got my custom-made insoles. You only actually need one pair if you are happy to buy the shoes designed to swop them around and be a bit limited in the choice of shoe. Shoes here are expensive anyway - but I work on the premise that mattresses and shoes are worth it: if you aren't in one, you are in the other.

And definitely patronising home industries - the orthotics guy is in the village! His father has made shoes for Popes!

DONNA1949 profile image
DONNA1949 in reply to PMRpro

I have some inserts but not custom made. I could never figure out why the podiatrist I wasted so much time with didn’t suggest that. She was always referring me to his expensive running shoe place and would never suggest any particular brand but she sure liked to run down any shoe I wore in there. I think she was getting a kickback personally! Before I would have surgery I will check into a custom made shoe insert. Thank you from here in the good ole 🇺🇸 USA

PMRpro profile image
PMRproAmbassador in reply to DONNA1949

I am very sceptical about podiatrists. The supposedly wonderful ones in Dundee, Scotland, did nothing useful - obviously better at providing artificial legs! But when we moved south my neighbour was a chiropodist working from home - a very good one too, never had such comfy feet. She gave me a name and told me to ask the GP for a referral but only to her. This woman watched me walk across the room and identified the problem immediately and designed made to measure half-insoles made of carbon fibre. Hard as boards and a sod to find a shoe to fit them in but boy did they work! And free on the NHS!

Greytree profile image
Greytree

My feet feel like they have flattened since I started prednisone and October 2021. Actually, I didn’t notice anything like this until a couple of months ago and it’s been getting steadily worse . My ankles and feet hurt considerably by the end of each day. Not the sharp, pebbles pain. It’s a dull ache throughout my feet and ankles. Ankles feel like they’re collapsing. I don’t feel like I can tell my doctor about one more ache or pain. She thinks I just need antidepressants to deal with anything going on with me. Is there some kind of specialist or simply a podiatrist one needs for this? Or how about a neurologist?

PMRpro profile image
PMRproAmbassador in reply to Greytree

Not a neurologist really. A good podiatrist would be a good start if you don't want to go through your GP (who sounds a bit useless!). My daughter found an excellent one in Whitby - very handy as she is in the little parade of shops at the end of the drive! Wonder how she identified her. She was running at the time and got a lot of advice about better shoes and good shops to get professional fitting advice. Her dislocating knee is causing problems again so running is off the menu now and she has bought a bike.

The primary things with my new insoles are support for the front of my foot by the toes which is very flat and for my very high instep. We have been using them all day every day for a long time - I'm sure they are tired!

tangocharlie profile image
tangocharlie

I've had many feet problems so I'm sure there is a connection with PMR inflammation. I got referred to Podiatry just before Covid who referred me on to Rheumatology podiatry at one stage who gave me some insoles to wear which have really helped as me feet have sort of flattened and need more support. I also had steroid injections in both feet in the first few years of PMR, which sorted out what I was told was plantar fasciitis. I was in agony and nothing else traditionally given for PF helped

winfong profile image
winfong

The big toe pain made me think immediately of gout. And, if that was your only foot problem, I'd probably say that's what it was. I'm thinking, though, that with all your other symptoms, that's probably not the case.

Crowmaven profile image
Crowmaven

Me. I have the same issue. Feels like the bottom of my feet have been beaten.

r-o-y-1 profile image
r-o-y-1

I have been on pred for 6 years, started at 20 got down to 5 but was then stuck on 5 for a couple of years , i am now down to 2 but literally a couple of weeks ago the balls of my feet are incredibly painful especially in a morning , no idea if its PMR related but just noticed these posts, i have planta as well and have had for years and have had new insoles so could be related to that , i have seen a physio and he says it is my leg muscles that are causing the problem , but he doesnt really seem to know much about PMR- Just intrigued here that so many people seem to be suffering with feet issues.

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