Moving on : To everyone that has provided advice... - PMRGCAuk

PMRGCAuk

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Moving on

Bun31087 profile image
14 Replies

To everyone that has provided advice and support in the short time I’ve been on the PMR feed - thank you. I’ve learned a lot about a poorly known condition that makes the lives of its sufferers very difficult. While I received a preliminary diagnosis of PMR, my symptoms, lack of response to Prednisone and the results of a CT scan reveal I am dealing with something else. As I result I am going to drop off the PMR feed.

I wish you all the very best, and want you all to know that I plan on trying to make more people aware of PMR/GCA.

Bun31087

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Bun31087
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14 Replies
DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Nice to have met you, if only fleetingly…good luck for future…but you know where we are..

PMRpro profile image
PMRproAmbassador

You don't have to leave - because whatever you have, there will be a lot of commonalities in living with a chronic rheumatic-type condition. But all the best for a correct diagnosis.

Koalajane profile image
Koalajane

All good wishes, I hope you get diagnosed soon

Kendrew profile image
Kendrew

Very pleased you've not got PMR but hope you find whatever you're dealing with, less of a challenge and easier to manage. Take care and all the best for the future.

123-go profile image
123-go

Best wishes, Bun31087. 💐

SheffieldJane profile image
SheffieldJane

Good luck with getting to grips with whatever you have got. We will always welcome you for a visit. Conditions that mimic PMR are of interest.

Jackoh profile image
Jackoh

All the very best and good wishes for you dealing with whatever they find. X💐

MiloCollie profile image
MiloCollie

Best wishes 🥰

AshPen9 profile image
AshPen9

I was originally diagnosed with PMR like you Bun31087. The diagnosis changed to an inflammatory arthritis, but I stayed with forum because, as PMR pro says, there are so many commonalities. I consider my daily email to be really useful, and also it's a comfort to check in with so many helpful, friendly people who have similar issues. I hope that your treatment goes well.

Bun31087 profile image
Bun31087 in reply toAshPen9

Thanks Ash, I’m still here. I am in awe of the knowledge, strength and suffering of those who suffer from PMR. Unfortunately my recent CT revealed something sinister…….

PMRpro profile image
PMRproAmbassador in reply toBun31087

Hugs

Telian profile image
Telian in reply toBun31087

So sorry to hear that Bun. Best wishes and hope the treatment goes well. 🌺

AshPen9 profile image
AshPen9

I'm really very sorry about that Bun31087. I wish for you all of the courage and fortitude that you have admired in others here. I hope that your treatment goes very well and that you have a good support network to help you keep morale high. 'Hang on in there', and hang on in here because there are some lovely people who will say just the right thing to help you keep your chin up if you are ever feeling low. Take care.

MrsNails profile image
MrsNails

Best of Luck 🍀

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