pressure in head and body tingling

[ancientprune]

I', on 9.5 mgs of pred tapering from 15mgs at .o5 a month.I've had bouts of tingling with feeling like my head will explode but no pain off and on since I was diagnosed 3 yrs ago. Today was the worst and I don't know if I need to increase pred and if so how much.Its taking longer than usual to subside.Mybody feels like electricity running thru but no pain.I'm confused what to do.Any advice is really appreciated as I live alone.Went to hospital last month with panic attack but this feels different.

[SheffieldJane]

I really don’t like the sound of this symptom. A significant percentage of PMR sufferers go on to develop GCA (I’m one of them) and the hospital should have ensured that this was seriously considered. I think you should return to the Emergency Department of the hospital and point this out to them. The usual symptoms of Temporal Arteritis/GCA are an unusual headache, pain in the jaw when chewing - getting worse, any eyesight problems at all, a sore tongue possibly. Not everyone has typical symptoms, I didn’t but my Rheumatologist is really on the ball. I am sorry that you are having such a stressful time and living alone must make it worse. Do you have someone to go with you to hospital? It is important that you are not dismissed as having a panic attack. You should be fine, your tapering is good with tiny drops, as long as you leave at least 2 week gaps between. Can you ask your doctor whether an increased dose is advisable ? Move fast. I will be thinking of you. Xx

[Sharitone]

I agree with SJ, and hope you have seen a doctor by now. Doesn't sound like a typical panic attack!