Does anyone else experience this?: Hi everyone been... - PMRGCAuk

PMRGCAuk

20,334 members38,101 posts

Does anyone else experience this?

Attic profile image
13 Replies

Hi everyone been off Pred now for one year after having Pmr for seven years. All going well but each time I have Covid Jab and also after booster yesterday I feel as if Pmr is coming back for a couple of days. Does anyone else get this?

Thank you, Jenny

Written by
Attic profile image
Attic
To view profiles and participate in discussions please or .
13 Replies
SheffieldJane profile image
SheffieldJane

I felt like I had low level flu which was also a PMR symptom for me.

SnazzyD profile image
SnazzyD

It is common for all types of people to have muscle pain and stiffness because the body is being thrown into an inflammatory state in order to get the immune system to be on high alert. Non PMR people will just grumble but us autoimmune lot think the worst. However, some do find their autoimmune activity is stoked but hopefully it’s just a flash in the pan.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

I had my booster a couple of days ago - long off Pred - and I’ve felt slightly” off” since - no issues with first two - all Pfizer. Lady who vaccinated me did say I might feel like I had a hangover next day this time around - and she was right!

123-go profile image
123-go in reply to DorsetLady

All that and not a drop passed your lips! So unfair!

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply to 123-go

I thought it was most unfair as well…..🤔

PMRpro profile image
PMRproAmbassador in reply to DorsetLady

Maybe you should have broken out that bottle of bubbly - might as well be hung for a sheep as a lamb ;)

PMRpro profile image
PMRproAmbassador

Interestingly I had a flare after the second jab, no problems with the first or third. The first 2 were Moderna, the 3rd has been Pfizer. But as Snazzy says - if you feel flu-ey, achy or whatever with a vaccine and have a history of PMR, it will be suspected. Everyone else will just say it was the vaccine!

whitefishbay profile image
whitefishbay

Haven't had the booster/3rd jab yet but had the flu jab and had a wobble and my feet feel super stiff (always stiff but super stiff). Personally I would never have the flu jab and the third jab on the same day. Yipes. I don't want to upset the apple cart.

Joan-E-D profile image
Joan-E-D

I had a flu jab on Friday and my booster Pfizer Covid Jab on Saturday. As with my 2nd Covid Jab I ached and felt very weary for a day or so, which felt very much like PMR, but cleared up pretty quickly. I've been in remission for a couple of years now after 3 years of PMR. Hope this helps you not to worry to much.

paintpots profile image
paintpots

I had a reaction to my third dose, the other two no problem but the third brought back the pmr and I increased my dose. However my doctor said it is a common reaction on the third dose and probably was not a flare. Whatever it settled down after I increased my pred.

HeronNS profile image
HeronNS in reply to paintpots

Have you been able to reduce again since?

paintpots profile image
paintpots in reply to HeronNS

I decided to reduce slowly over 10 weeks to get from 5 back to 3mg. Only in my 2nd week, my doctor is no help in how much or for how long to taper but I am OK so far.

HeronNS profile image
HeronNS in reply to paintpots

That sounds like a good plan. As we often say, it isn't slow if it works. ☺

You may also like...

Does anyone else experience this?

I have just tapered down to 3.5 mg of pred but I still have a lot of pain when I try to tuck my legs

Does anyone experience this type of pain?

Has anyone ever had pelvic, vaginal pain? Have been on predisone for almost two years. Pain...

Does anyone have experience with herbal supplements for PMR?

prednisone. It's too early to tell if it helps. Does anyone have any experience augmenting...

Does anyone else get this odd symptom?

restart once I got down to about 7.5mg after a couple of years, and now I am very slowly tapered to...

Does anyone else with PMR, have a problem with there hands.

hands. I have had all the tests, which shows nothing out of the ordinary. Does anyone else have...