Vaccine

[2013mayo]

Hi everyone,

Just had a letter from rheumatologist to say I need 3rd vaccine and a booster in 6 months, they state because of low immune response from vaccine it’s needed.

Hope you are all well, I’m still bed bound, not allowed to weight bear, driving me up the wall.

Take care

Xx

[Rugger]

I've had a similar letter from my Rheumatology service. They're inviting me to the football ground in the city next to mine - no way! I'll keep trying to get it done locally.

I imagine you'll have to wait for yours until you're back on your feet.

💐

[2013mayo in reply to Rugger]

Hi Rugger,I’ve got a wheelchair for now so if needed I can go to a centre for the vaccine, I had my flu jab yesterday at my surgery. The nurse was fantastic as she gave me the jab in their tiny car park. Saved us getting the wheelchair out. Not sure re the third vaccine, receptionist said she’d ask the doctor, ?

My arm really hurts now 🤕

Xx

[Telian in reply to 2013mayo]

They could do a home visit as a one off. You would need to ask and tell them why. They don’t offer!

[2013mayo in reply to Telian]

Maybe, but I know my doctors really don’t do home visits, well not recently.X

[Telian in reply to 2013mayo]

They do try to get out of it if they can. Good luck.

[2013mayo in reply to Telian]

Thank youX

[Sharitone]

Did they test your immune response?Hope you make some progress soon

🌺🌼🌸

[2013mayo in reply to Sharitone]

No, no one has suggested that, I did do a free test as part of a trial but I tested negative.X

[PuttyPenguin]

Can I ask what dosage you are on please, Mayo?

[2013mayo in reply to PuttyPenguin]

Hi,

At the moment I’m on 5mg pred, but I’ve often been on much higher doses when I’ve had relapses, sometimes 40mg or even higher, this is the the lowest I’ve been since 2 years ago, only just recently I had to increase to 10mg for 5 days.

X

[Nagswoman]

I was on an antibody trial. Antibody test last Dec. No antibodies at all. Both AZ jabs. Antibody test 4 weeks later, end of May. Results in August. Plenty of antibodies. Now, do I wait for the 6-months-later antibody test to see how they are surviving or get the booster? Not seen the rheumo since 30/12/19. Not seen a doc for 20 months. Couple of phone calls only.

[2013mayo in reply to Nagswoman]

Hi, Same thing, I had 2 AZ vaccine ( just the testing only trial for antibodies).

Mine came back negative after 4 weeks, yet 3 months later I had another test and then it showed antibodies. I’m still going to have the 3rd vaccine though, if you read up on having 3 doses of the vaccine it explains why clinically vulnerable people need the extra vaccine and then the booster in 6months. This is why I assume rheumatologist wants me to have 3 doses.

Hope this makes sense.

Xx

[Grammy80]

I'm so glad to hear they are on top of getting you your booster!! I'll bet you whip around in that chair. Be well..best wishes.💖

[2013mayo]

😍, I’m getting quite good using the wheelchair now 🤣