There’s always something! Now more breathing prob... - PMRGCAuk

PMRGCAuk

20,342 members38,113 posts

There’s always something! Now more breathing problems.

Karenjaninaz profile image
7 Replies

There’s always something! I have absolutely no symptoms PMR no matter the dose.

But I do have adrenal insufficiency and pulmonary problems. I am on a steroid inhaler and steroid nose spray for environmental allergies. These are usually the last things eliminated once you are off systemic steroids. After my flu jab I thought my lungs were congested and my breathing was more difficult. It was also many environmental allergies present the season: mold and now Sahara dust. I do not even go outside to exercise; I have to do everything inside. Meanwhile the inhaler I was using called Brio seem to make my breathing worse after using it! I didn’t want to take another puff. I add here I do not have asthma or COPD but what’s called reactive airway disease. It doesn’t repond well to steroids or the usual asthma medicines but maybe helps a little for the allergies. I called the pulmonologist and couldn’t get an appointment until November. That will not do. So I resumed another inhaler that has steroids in it that has not expired. My oxygen levels were getting lower than usual and that was scary. So I decided to add 4 mg of prednisone to my five and three-quarter daily dose. I will see the substitute pulmonologist on Thursday thank goodness.

Does anyone else have issues with inhalers and systemic steroids at the same time? Will I ever be off the stuff?

Written by
Karenjaninaz profile image
Karenjaninaz
To view profiles and participate in discussions please or .
Read more about...
7 Replies
Karenjaninaz profile image
Karenjaninaz

Follow up: since I was in 5,75 pred and feeling so unwell I took 4 more mgm and symptoms improved; I went from O2 sat of 90% up to 96%.

SheffieldJane profile image
SheffieldJane

I can’t help but do get attacks of breathlessness out of the blue since PMR/GCA and Pred and I know that the blood oxygen finger clip should not dip below 96, so it seems like you are doing the right thing. I wonder if I’ve got that too, (RAD) to add to my woes? The doctors don’t seem very excited but it’s a horrid feeling. I’d welcome something to help.Incidentally, I know that the Endocrinologist would need to know about the inhaled steroids as well as Pred if you decide to have your Adrenals tested. I was asked. You are at that stage.

Constance13 profile image
Constance13 in reply to SheffieldJane

The only time I get breathless is when I use a mask. I can't understand why as I have no other breathing problems.

SheffieldJane profile image
SheffieldJane in reply to Constance13

I do too and wonder if it’s a sort of mild panic attack. I can’t do the fabric ones only the blue medical ones. It doesn’t help that my glasses steam up as well.

Constance13 profile image
Constance13 in reply to SheffieldJane

I'm not usually a panicky person but......?

PMRpro profile image
PMRproAmbassador in reply to SheffieldJane

OH is the same - he does have lung problems but the effect of a mask of any sort is major. I find the FFP2 masks easier because they don't suck onto the face.

Amkoffee profile image
Amkoffee

Like you I have lung disease and adrenal insufficiency and PMR. It doesn't sound like you have a nebulizer to use for breathing treatments. This is something you should request from your doctor. There are quite a few drugs that can be used with a nebulizer but the most common one is albuterol. This drug will dilate your bronchial tubes making it easier to breathe. It also comes in an aerosol inhaler.

You may also like...

Is it just a flare or something more sinister

barely move my neck left or right. I have upped the dose to 10mg the last 2 days but nothing has...

Was doing so well now back/hip problem

two weeks then rest of month on lower dose. This is how I have been reducing each month and it was...

Back and hip problems now

started with PMR this January on 15 mg Pred and have successfully reduced to 10 mg in July. Ten days

~What immunity have we with a reduced steroid intake for our PMR? ~

the end to step back up to my usual dose. Added is my concern that I have been fighting mild...

Now on 5mg. Advice on introducing more carbs?

been strict with my carbs but was wondering now my dose is lower if there was any harm of...