Positive rheumy appointment

[Suet3942]

Last week I had an appointment at the hospital with a rheumatologist that I had never met before. He was wonderful. He really listened and had a really gentle manner. 3 years ago I'd been advised by the rheumy nurse to take methotrexate every other week due to hair thinning. He was quite horrified by this and made me promise to take a lower dose but weekly.

I told him my hip area was sore and he examined me and said he thought it was bursitis. We agreed on a treatment plan and he gave me his secretary's number in case I needed to speak to him. My esr was the lowest it's been in 9 years and he said I was very well in formed. I told him about this site and he took a note of it. I felt very positive.

[Hidden]

Well done him. Isn't it lovely to get a really nice doc or rheumy that we can speak to on our level. Mine was pretty good too, but think he was being a bit hasty discharging me in under 2 yrs due to also my ESR/CRP was doing so well. However, I managed to get down to 6.5mg and have run into a few issues....so back up to 8mg and will see what happens.

Good Luck

Anne

[PMRpro Ambassador]

Oooooohhh! Which hospital is that? Was it a consultant or a registrar?

Did the alternate weeks mtx help the hair loss?

[Suet3942 in reply to PMRpro]

He was a consultant at Queens hospital in Romford.

[borednow in reply to Suet3942]

Give that man a medal!!

[Sophiestree in reply to Suet3942]

Name? I am very near there!!!!Was he a consultant?

[Suet3942 in reply to Sophiestree]

Hi there. Yes a Dr Rousso. Where do you live ?

[PMRpro Ambassador in reply to Suet3942]

Suet - the Rousso listed at Romford says it is a female

spirehealthcare.com/consult...

[Suet3942 in reply to PMRpro]

Hi pmrpro. That was the name on the appointment letter. He was definitely a consultant. I’ll phone his secretary and find his name. What a mistake 🤔

[Sophiestree in reply to Suet3942]

Buckhurst Hill

[Sophiestree in reply to Suet3942]

Did you say you saw a male consultant? She is female?

[Suet3942 in reply to Sophiestree]

Yes I’ve just had that pointed out to me by pmrpro. That was the name on the appointment letter. I will find out. I’ve got his secretary number.

[PMRpro Ambassador in reply to Suet3942]

Was he a consultant or the senior reg?

[Suet3942 in reply to PMRpro]

Definitely a consultant. I've left a message on his secretary's phone

[Sophiestree in reply to Suet3942]

maybe you saw her registrar?

[Suet3942 in reply to PMRpro]

Sorry forgot to reply that yes the hair loss slowed right down.

[PMRpro Ambassador in reply to Suet3942]

Did you up the folic acid too?

[Suet3942 in reply to PMRpro]

I’ve always taken it 6 days a week.

[jinasc]

Like PMRpro who and where to add to my list. Hang on to him like glue.

[PMRpro Ambassador in reply to jinasc]

Dr Rousso - see just above.

[jinasc in reply to PMRpro]

Ta and added.

[SheffieldJane]

Hello Sue! What a nice story. It restores your faith. We really ought to have a roll of honour for great Rheumatologists!

I just saw your post jinasc. Is it on the site yet?

[borednow in reply to SheffieldJane]

Roll of Honour? That's a brilliant idea.

[PMRpro Ambassador in reply to borednow]

jinasc has one - I doubt we would be allowed to put it up in public but she will always advise if you ask her

[jinasc in reply to PMRpro]

You are so right and I would never ask............

[Hirondelle in reply to jinasc]

Hello jinasc - it says above that you have a list of good consultants for PMR. I would love to find one for Suffolk, Norfolk, Essex. How do I find your list, please?

[jinasc in reply to Hirondelle]

Send me a PM with how far you are willing to travel and I will respond.

[Hirondelle in reply to jinasc]

Thanks so much but I don’t know how to pm

[PMRpro Ambassador in reply to Hirondelle]

Click on the person's avatar and you get their profile page - at the top right is a blue box saying Message. Click on that and a box comes up just like writing a post but addressed to the person to whom you want to send a private message. Only they can see it, not even HU has access unless the recipient reports it if it is a nasty message.

When you get a message sent to you, a number appears on the Chat icon at the top of the page (has a paper aeroplane beside it)

[Hirondelle in reply to PMRpro]

Thank you so much. Have taken a screenshot so that I don’t have to bother you again.

[Suet3942 in reply to SheffieldJane]

Good idea Jane. X

[SheffieldJane in reply to Suet3942]

I thought 360 degree feedback was all the rage these days. We won’t mention the mean ones. 🙄As long as people can be pointed to a good one if they are stuck.

[PMRpro Ambassador in reply to SheffieldJane]

Only for a certain generation I suspect!!!!

[Cosmos22Marigold]

I found a good one too and he is on the list now. I am off to see him again tomorrow and he has recommended to my Dr that I need a brain scan due to dizzyness I have had since last Nov when I was diagnosed. I have told her so many times how giddy I am but got nowhere. So nice to have talked to someone face to face at last who knows about PMR. My only real help has been this forum for which I shall always be grateful for getting me through this.