Hi I’m currently getting tested for giant cell and was coming down from 30 mg of prednisolone got to 12.1/2 and past two days felt pain back in the jaw head scalp all right side so doctor has put me back up to 25 🤦♀️
And now today went to stand up and took a pain on my right foot and its like a golf ball I think it could be bursitis.
Has anyone every had this ?
I am so sorry that you are suffering all these rotten symptoms. Yes bursitis seems to crop up alongside PMR. I haven’t had it myself but others will be along. When you say that you are being tested for GCA, does this mean that you are being treated for it in the meantime? Or are your doctors attempting to confirm the diagnosis - which is hard whilst being treated with Pred? It sounds pretty active at present and I wouldn’t want to be tapering until it settles. I had a look at your past posts and see that you have had ear pain that can also be associated with GCA. You are at the young end of the age group for GCA, is this why your doctors are being so tentative? The normal dose for GCA is 40 mgs- 60 mgs some people need much more. You really need to be treated with more urgency as your eyesight could be at risk. Incidentally a low carb, low sugar diet has worked for a number of members on here. Working out will have to be saved for when you are much better. Gentle exercise such as walking, Pilates, and yoga will keep you supple in the meantime, do pace yourself though. Do you have a Rheumatologist? You need a good one, fast. Take care. Sorry to ignore your central question about Bursitis, I only know what I can Google, it sounds so painful and yes it pops up here a lot.
Hi Sheffield Jane , I have seen a rheumatologist once in a year half and feel like shes unsure I have had one mri and bloods which were normal that’s it she mentioned pmr , giant cell and she said wasn’t convinced which never gave me much hope And that was in March nothing since then .
It’s all very frustrating and with no confirmed diagnosis I don’t know were I’m at , I definitely feel it’s giant cell but just need them to tell me that .
I have to see my gp tomorrow he wants to look at my foot and he put me up to 25 mg today and said to stay in that just now .
Thank you for all your help x
I know that all our medical appointments have been pretty messed up over the past year. However, the symptoms that you are experiencing sound very GCA - like to me. I think I would want the opinion of another Rheumatologist. Some people do not show our diseases in their blood test results. My GCA was diagnosed by a specialist ultrasound scan. If you get any eye related symptoms such as double vision go straight to an emergency room in the hospital.
Where on your foot? Does it FEEL like a golf ball or LOOK like one?
If it is on the ball of your foot - could it be a Morton's neuroma?
mayoclinic.org/diseases-con...
Hi it’s on the ball of the foot and it’s like a hard golf ball and it came up instantly.
Does the link sound familiar?
Yes it sounds like that but looks like bursitis it does feel like I have a rock in my sock .
Not much in the way of bursae down there, only in your heel. And you can't really SEE bursitis ...
It's weird isn't it? I have developed a swelling about the size of a cherry tomato on my big toe knuckle, and all my toes have swollen like sausages and are rather stiff, and don't look to good in Summer flip flops! I have an appointment with GP next week and see what he thinks.
Swollen toes and fingers can be symptoms of arthritis.
Thank you PMRpro, I was wondering, as the ache calms down with paracetamol. Also have psoriasis, so thinking may be psoriatic arthritis. Its amazing how many things pop up alongside PMR, I'm sure I have that, as originally the pain in shoulders etc magically faded after a few hours of starting the pred. I'll wait and see next week.
I had a bump on the side of both big toes during the early stages of PMR symptoms - terribly sore and I couldn't wear shoes so spent a couple of winters in Birkenstocks and thick socks! It stopped eventually and has never returned.
Despite the 6 hour miracle I had with pred, one rheumy I saw was determined it wasn't PMR I had and was fixated on psoriatic arthritis (never had psoriasis in my life though the arthritis can come first) or another spondyloaarthropathy. So obviously some of them think you get the magic response with other things.
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