I am today posting, to give hope to others on tapering plans!
After 4 years of first GCA followed by two bouts of PMR, my third attempt of tapering , continues to be promising. I chalk off a new week every Wednesday on my calendar and I have reached the ten week mark.
That is ten weeks of no prednisolone, calceos tablets and alendronic acid with no ill effects. True I have lost energy but also lost the feeling hungry mood and my blood sugar levels are now the lowest in four years and in the normal range.
I hope to post at some time in the future, that this time it is the real deal!
Written by
DevonMichael
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I'm nearly three years in to this journey with GCA.... your story gives me hope ! My pred. taper has been interrupted by three flares, but I carry on. My Rheumy started me on 20mg leflunomide a month ago and it seems OK. I hope you can keep marking your calendar on Wednesdays and would love to be able to do the same ! Best wishes, stay safe, Carole
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