Hopeful but still keeping fingers crossed! - PMRGCAuk

PMRGCAuk

21,030 members39,701 posts

Hopeful but still keeping fingers crossed!

DevonMichael profile image
12 Replies

I am today posting, to give hope to others on tapering plans!

After 4 years of first GCA followed by two bouts of PMR, my third attempt of tapering , continues to be promising. I chalk off a new week every Wednesday on my calendar and I have reached the ten week mark.

That is ten weeks of no prednisolone, calceos tablets and alendronic acid with no ill effects. True I have lost energy but also lost the feeling hungry mood and my blood sugar levels are now the lowest in four years and in the normal range.

I hope to post at some time in the future, that this time it is the real deal!

Written by
DevonMichael profile image
DevonMichael
To view profiles and participate in discussions please or .
Read more about...
12 Replies
Spanky2019 profile image
Spanky2019

Thank you so much for encouraging report. There can be light at the end of the very long tunnel. Have a great day!

SnazzyD profile image
SnazzyD

🤞🌱

SheffieldJane profile image
SheffieldJane

That certainly does give hope DevonMichael. I know you’ve been close before but this sounds like the real deal.

Meggsy profile image
Meggsy

Thank you DevonMichael, success stories are always appreciated and encouraging. 👏👏🌻

powerwalk profile image
powerwalk

Best of luck!!!x

Kaaswinkel72 profile image
Kaaswinkel72

Wonderful news! I am sure you are so aware of finally being well again!

Kendrew profile image
Kendrew

Fantastic news and just what I needed to hear.. Well done. 🥳🥳🥳

membership profile image
membership

I'm nearly three years in to this journey with GCA.... your story gives me hope ! My pred. taper has been interrupted by three flares, but I carry on. My Rheumy started me on 20mg leflunomide a month ago and it seems OK. I hope you can keep marking your calendar on Wednesdays and would love to be able to do the same ! Best wishes, stay safe, Carole

Bachblues profile image
Bachblues

Hooray for you! Marvellous news and hope for us all!!!!

Flosy profile image
Flosy

That's good news,well done.very encouraging new for others on here.take care.

Frewen1 profile image
Frewen1

Golly, I have three and a half years to go to catch up with you... but if that's show long it takes...very best luck that you sustain this. Karen

Bignorhill profile image
Bignorhill

Congratulations, good to be off the Pred. Lets hope there is no relapse.

Not what you're looking for?

You may also like...

Fingers crossed

Woke up on Saturday morning with bad pain in the outer corner of my with pain radiating up to sinus...

Fingers Crossed

Hello everyone🤗 I can't tell you how much I appreciate all of your posts. I was diagnosed with...

Positivity and I must Admit Fingers Crossed

My first day of 10mg of Pred. Last time I got this stage I failed miserably and had to go back up...

Fingers crossed further update

So after developing opthalmic shingles and spending 6 nights in hospital I am now at home with a...

Update on fingers crossed

Well I saw the doc on Monday who prescribed 40mg of pred in case it’s GCA. Along with a couple of...