Are you interested in exercise for PMR? (Another one for UK patients).

[Fran_Benson]

Dr Sarah Mackie (rheumatologist, Leeds) is planning an online meeting for patients interested in physical activity/exercise for PMR. It's due to take place on 12th January 2021 from 10am -11am for patients in the UK.

Numbers will be restricted so there is no guarantee you will get a place but if you're interested do message Dr Mackie (via Twitter) with your email address - see link below.

twitter.com/Sarah_L_Mackie/...

[PMRpro Ambassador]

That is discriminatory - many of us don't use Twitter ...

[MrsNails in reply to PMRpro]

I can send you the link 😉

[PMRpro Ambassador in reply to MrsNails]

But you have to join - thanks, but no thanks

[MrsNails in reply to PMRpro]

There’s a way round it! 😉

[TheMoaningViolet in reply to PMRpro]

I had a look and it would seem that she invited specific individuals to join her for the session. It does not seem appropriate for us to respond to it; it seems to be targeting people who are providing physio support. Perhaps Fran could clarify?

[Fran_Benson Partner in reply to TheMoaningViolet]

Dr Mackie included those names so that we would share the information. I retweeted it to our followers and checked with her that she was happy for me to share on HealthUnlocked in case anyone was interested over here.

It is very limited numbers though so there is no guarantee you'll get a space but if there are loads of extra people, she may run something else at another time.

Fran

[TheMoaningViolet in reply to Fran_Benson]

Thank you for clarifying it Fran.

[suzy1959]

I am interested but am not on Twitter and don't want to have to join just to reply!

[Kendrew]

I too don't do Twitter, Facebook etc but would definitely have been interested. Like others......don't wish to sign up for Twitter just in order to access this, but thankyou.

[Fran_Benson Partner in reply to Kendrew]

I'm sorry this isn't accessible for all. It is difficult - I saw it on Twitter yesterday and thought it might be useful to share here for some people but on the other hand don't want to upset people who aren't on Twitter.

Fran

[edithhope in reply to Fran_Benson]

Many Tx Fran for bringing this to our attention! I'm continuing to do my own HIIT sessions which I enjoy but as my muscles can vary in their response, it will be good to have a professional opinion / knowledge. I've contacted Dr Mackie so fingers crossed I'll be able to join in.

[Kendrew in reply to Fran_Benson]

It's all good. There are always other opportunities. 🙂

[Jan_Noack]

I would love to join in group classes over zoom or similar, and I'm in Australia! LOL You need more than one calls though, so I gather this was probably an invite-only to discuss concept and what exercise may be possible without irritating already sore muscles (or whatever it is that gets sore) and stretching at times that maybe stretches nerves (even though one only raises one's arm a little) and feels like you snapped your bones (identical feeling actually having done both!)

[Fran_Benson Partner in reply to Jan_Noack]

Yes I think this is just a discussion point, looking for input from people.

[Telian in reply to Jan_Noack]

OMGoodness Jan, how awful for you.

[Littlejan22]

I am interested in learning more about this illness just diagnosed

[Daffodilia]

Yes I have replied on Twitter

[Coffeebeans]

I've replied, she has said patients are welcome too ☺️

[Bignorhill]

Can you request that the session is recorded and shared with this group afterwards?

[Thelmarina]

Thanks Fran. I'm very interested as tapering gives a bit more flexibility and muscle tone is all important.

[Musiclady18]

Hi Fran I would be interested in the exercise program but I am in Canada and will be teaching at that time, does Dr. Mackie have an email I may send her a note, I do not do twitter! Sounds like a great idea! Thank you for sharing. Lois Mercanti aka The Music Lady

[Fran_Benson Partner in reply to Musiclady18]

Hi Musiclady, I think this is just a discussion where Dr Mackie is getting input from various interested parties. I'm afraid I can't share her email but I will let Dr Mackie know that there is considerable interest as it may be that she will do more as a result. I expect the reason she chose to share it on Twitter was because she was looking for a small number of people.

[Musiclady18]

Sorry Fran Musiclady18 is my name on Health Unlocked

[Alazarin]

I would like to join this. I am a yoga teacher and may be able to set up zoom classes for people with pmr. I have found I have to do a lot of adaptation and be careful with timing. So it would be good to here her take. I would like to connect without Twitter too.

[Jennyhampshire in reply to Alazarin]

Hello Alazarin I practiced yoga through my 20’s on and off until this disease got the better of me 3 years ago (I’m 58 now). Now though, even when I try a few gentle exercises it only causes pain and fatigue etc in the days following.

I would love to hear from you if you set up any online classes to see what you might suggest?

Thanks 🙏

[Alazarin in reply to Jennyhampshire]

Thanks for that Jenny. It would be good to explore what actually is suitable. I am a yoga therapist and I have worked a with people with MS and Parkinson’s. And of course it’s not all about postures, breathing and relaxation could help a lot. Let’s see what interest there might be.

[PMRpro Ambassador in reply to Alazarin]

I did Iyengha yoga for a couple of years with PMR but no pred - aquafit, Pilates and the yoga kept me upright! All were heavily adapted but once I had done aquafit I could manage the Pilates and yoga fairly well.

[ayoung]

I am interested in exercises.