I've seen several posts in the past where PMR & GCA sufferers have expressed some anxiety about taking a trip abroad, particularly when newly-diagnosed. Having had to cancel a trip to the USA exactly a year ago just prior to starting on 15mg of Prednisolone, I was feeling somewhat nervous last month as to how I would fare on a long-haul flight to a three-centre holiday.
So - I'm happy to report that I coped with the flights, two drives (first time on USA roads), LA-San Diego & Temecula-Las Vegas, and trips out every day (no 'chilling' anytime!). Yes, it was tiring but at no time did the dreaded 'flare' present itself.
Having heeded the advice from our experts on this forum, I took the following precautions: I stopped the DSNS taper just before leaving. I upped the dose by 1mg on each travel day I took with me a 60mg over-supply of Pred
For my own part, I stretched my budget to the max bought Premium Economy tickets for the first time - the physical benefits may be marginal but it was a more cosseting experience and set me at ease from the 'off'!
ANYWAY - the message that I wanted to get across to new sufferers of this infuriating and debilitating condition is: don't despair, you can get your life back and you can take a break - even far away - if you plan ahead and take precautions!
Ah well - now to get on with the sub-7mg taper....... best Wishes to all with their recovery!