Wonderful Ladies

[Xanthe12345]

I hope the Doctors around the world appreciate how much time you Ladies save them. I must have saved at least 6-7 visits to my Doctor with the advice you have given me over the last 3 years.

Wished there was someway we could let them know!

[Hidden]

You make a valid point! I too havent had to visit my GP as much. Especially after first couple of spots after finding the forum. I realised the experts here knew far more than my GP. I also think some of the vocab I have been able to use with rheumy has made that relationship easier.

[Yellowbluebell]

We are very lucky to have the people on this forum llike Pmrpro, mrsnails and dorsetlady as well as our excellent ambassadors who give such fantastic advice to our members.YBB

[stonecreek in reply to Yellowbluebell]

I sure agree!

[Hidden]

That's very heartening to hear & as you know we'll also tell you when to Consult your GP/Rheumatologist or to go to A&E/Emergency Room PDQ

[scats]

Most of them won't have any idea. We must keep spreading the word.

[Blearyeyed]

That's very true , because you have good informed advice before you go to the GP you know you can help them give you the correct treatment on your first appointment instead of it taking three or four visits before they get it right.

Thank you to all our forum experts for making our lives a bit easier everyday.

The Gin and Cake is in the post!😋😂😂😂😘😘😘

[SheffieldJane]

I have learnt just about all I know from this forum and feel less alone when I read about other’s experiences. I think doctors have a browse too, or knowledge is just spreading.

[Hidden]

It’s such a long wait to get into a rheumatologist. I waited nearly 2 months for an average dr. To get to a popular dr for autoimmune, the wait is 6 months. I told the admin that I would be dead in 6 months and I really thought I was dying. Thank God pmr is common and easy to treat and any rheumy can diagnose. A reduction in backlog will allow the people who are trying to get an understanding with autoimmune condition to attain help sooner. So it’s all good on many different fronts

[pigeonCl-HU]

Xanthe12345, what a lovely post!

And it is all true. Not many Forums like this one.

Best wishes to the 'Wonderful Ladies'.

pigeon.

[Hidden]

Yes....thank you all for your wonderful and informative advice. I don't often write but read posts every day.

[Yellowbluebell in reply to Hidden]

Dont worry that you dont post often. Some members do, some dont but if you are getting the help by reading posts thats all that matters.

[Theziggy]

Mr GP (and I'm not a lady BTW), who has been brilliant, sometimes tells me to ask the GCAPMR forum of I have a question about tapering etc. as they probably know more about it than he does.

[Constance13 in reply to Theziggy]

A "high five" to that doctor.💥

[pigeonCl-HU in reply to Theziggy]

That says it all!

What an open minded doctor.

His suggestion to consult this forum is a bona fide confirmation of Xanthe's "Wonderful Ladies".

pigeon.

[Sho-Sho]

Well said - in the early days of my GCA journey this forum was my saviour. I learned more from the wonderful Moderators and members than I ever did from most of the medics. I don't know how I would have coped without this support and even now, 3 years later, I still read it every day and learn.

My thanks too.

[Iloveholidays]

I don’t know what I would do without this forum, I have learnt so much and learn something new everyday. Thank you 😊

[FRnina]

Me too. Tremendously grateful for this forum. Not only for learning about PMR/GCA but just as importantly learning how to live with it. All served up with compassion, knowledge and care. Thanks wise ladies.

[Charlie1boy]

Totally agree, and I have said so before. Four and a half years into PMR, and only three visits to my GP - all in the first six months. Firstly for diagnosis, secondly for getting results of initial blood test, and thirdly, some six months later to check on blood/ sugars.

Since then I have tapered down to 2/2.5 mg on the basis of advice given on this site, and my GP has been happy to let me do this.

What a saving of time/money to all concerned.

Huge thanks to PMRpro, DorsetLady and Celtic (in the early days) in particular, though I have to say the newly appointed Moderators are also doing a great job. Can't help adding that it is good to be back "on topic".

Paddy

[Yellowbluebell in reply to Charlie1boy]

Thank you for posting about being back on topic. That was the remit of the job as well as making the site safe for everyone but sometimes this is an unpopular issue for people.

[Charlie1boy in reply to Yellowbluebell]

thanks for your reply. By keeping on topic, and with the new Moderators, I believe the forum is doing better than ever. I just don't know how you all keep up with the workload!Paddy

[PMRpro Ambassador in reply to Charlie1boy]

Sometimes we wonder too ...

[Yellowbluebell in reply to Charlie1boy]

I was about to say the same pro!!

[Hidden in reply to Charlie1boy]

Thanks Paddy, as long as it’s relevant like today’s topic on keeping cool 😎 that all we want to aim for 😊

[Jackoh]

Yes totally agree.

[Noosat]

I second this !! Fortunately I have a GP who is willing to discuss and consider the information I find here.

[iveco]

I also am very pleased I found this place, I do not post very much but read most days .

I think all doctors/gps should be told about this forum and they should come and have a read through . I told mine but he did not seem so interested , but he not so good himself in understanding epmr or gca. Thank you all for the help you give here, it is better than going to the doctors..

[Oumaof2]

Well said everyone👏👏Finding this forum has been a life saver for me.... After floundering for almost a year, these wonderful caring ladies, who give so much of their free time, have steadied the ship....

So to the Moderators, and Ambassadors, a huge thank you....

👏👏👏👏

💐💐💐💐💐💐💐💐💐

[Highlandtiger]

I agree 100%. My GP hadn’t heard of the HU forum or PMRGCAuk charity before but having heard me talk about things I’ve learned on here he is now happy that I largely manage my Pred tapering and any temporary increases myself rather than coming to see him all the time. So I just go for my fairly infrequent routine appointments. Also armed with info from here I put forward an argument for stopping alendronic acid which he agreed with so we were able to make an informed decision together which makes for good GP/patient relations. The last time I was in we were discussing something about my condition (sluggish adrenals I think) and he asked what I thought and said 'well, last time you were here you were educating me!' Yay!

So many thanks to all the moderators and ambassadors, and indeed the other experienced regular posters. I really don’t know how you all find the time to do it. But it’s very much appreciated. 💐